I am sure you will all be aware of Fertility Network UK’s Scream4IVF campaign, aimed at ending the postcode lottery for IVF treatment. If you haven’t signed the petition yet which calls for a parliamentary debate on the subject you can do so here. The charity has been asking people to donate their scream on social media to give a voice to people with fertility problems and allow their frustrations to be aired. The screams will be collated to form the world’s longest scream for IVF to be played at a rally outside Westminster. The charity is encouraging people to join them at at the rally which takes place at Richmond Terrace at Westminster on October 10th from 5pm to 7pm.
If you’re a fertility patient in North West London, and would be able to spare a few minutes to send an email or to talk to someone about your experiences of fertility problems and accessing NHS care, you could help to change the future for yourself and other fertility patients.
In Hillingdon, the local HealtWatch (which represents people’s views & experiences of care) has been reviewing local referral policies and noted that many of these do not follow the national NICE Clinical Guidelines, including the one for IVF. The Clinical Commissioning Group (CCG) there is part of a group which covers all 7 CCGs in NorthWest London and they all have the same policy for IVF. The areas covered are the London Boroughs of Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea, and Westminster.
The guidelines from NICE recommend 3 full cycles of IVF treatment for eligible women aged 39 and under, and one full cycle for eligible 40 – 42 year olds. In North West London, women under 40 get just one cycle, and those of 40 – 42 don’t get anything. This doesn’t follow NICE guidance.
HealthWatch Hillingdon have been attempting to influence the Hillingdon CCG to follow NICE Guidelines, but they need more evidence of the impact of this inequitable referral policy on women in North West London who need IVF, but are not getting the treatment NICE advises. So, all the help you can give them will be welcomed.
You can either email a summary of your experiences/views and impact of this IVF policy has had on you to Healthwatch Hillingdon (email@example.com) or if you prefer, you are welcome to call Healthwatch Hillingdon (01895 272997) and they can record your views/experiences/comments for you,
All the information that you provide to Healthwatch Hillingdon will be kept completely confidential and they will not share any personally identifiable information with any NHS organisation or other body without your written permission.
Do you live in North-West London? Have you been refused NHS-funded fertility treatment? The NICE guidelines say that if you’re 39 or under and need IVF, you should be entitled to three full cycles, but at present that’s not happening in many areas of the country, including the London boroughs of Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea, and Westminster.
If you’re fed up about what you’re being offered and live in one of these areas, could you contact firstname.lastname@example.org – this isn’t for media purposes, so you can remain anonymous. Many thanks in advance!