When IVF doesn’t work…

It’s something no one wants to think about when they are just starting out on fertility tests and treatment, but we know that IVF doesn’t always work. Even in the best case scenario, an individual treatment cycle is more likely to end with a negative pregnancy test than a positive one, although cumulative success rates are much more heartening. Perhaps if we didn’t shy away from the statistics, it would make unsuccessful IVF easier to cope with.

At fertility information events, there is often a reluctance to include any mention of IVF not working, and that doesn’t help fertility patients. We wanted to include a session on this, and on living without children at the Fertility Forum in London on March 30. We wanted to give an opportunity to hear some of the strong and powerful voices of women who are living without children, and how they have found peace and happiness. This session isn’t exclusively for people who are approaching the end of their treatment – it’s just as important for those who are still going through tests and fertility treatments to allow them to see that treatment not working doesn’t have to be the end of happiness.

In a session chaired by Fertility Fest founder Jessica Hepburn, we have four inspiring women who are helping others change the way we think about living without children. There’s Jody Day, founder of Gateway Women, Yvonne John, author of Dreaming of a life unlived, Kelly Da Silva of the Dovecote and Lesley Pyne, author of Finding Joy Beyond Childlessness.

I’ve met all of them and they are a pretty fabulous bunch – don’t be afraid to come and hear what they have to say, no matter where you are on your fertility journey. Organised by patients and bodies representing all the professionals in the field, the Fertility Forum also includes talks on a huge range of other fertility-related topics with many of the UK’s leading experts. Come and join us in London on March 30 for a day of accurate, unbiased information in a non-commercial setting with no promotions or sales pitches. The Fertility Forum is all about evidence – and you can get tickets here.

Fertility Forum speakers

Next month’s Fertility Forum promises to be an informative event for anyone who wants to know more about their fertility, tests and treatment options. The wide range of speakers will be covering topics across the board to ensure there is something for everyone whether you are just starting to think about your future fertility or have already had treatment. The full list of topics and speakers is now finalised:

  • Fertility specialist Raj Mathur will look at what can affect your chances of conceiving naturally, when and how to seek advice and will run through the tests you should have.
  • Miscarriage expert Professor Lesley Regan will cover the causes of miscarriage and why do some women experience recurrent miscarriage. She will discuss investigations and what can be done to help.
  • Fertility specialist Ertan Saridogan will give the low down on endometriosis and how it can affect fertility. He will cover all the options for treatment and how to choose between them.
  • Leading male fertility specialist Professor Allan Pacey will explain male fertility and how sperm are made. He will talk about what affects the number and quality of sperm that a man make and the tests that are used to diagnose male fertility problems, as well as the solutions that can be offered.
  • Director of the Donor Conception Network Nina Barnsley will explain what you need to think about when considering donor treatment, how to decide whether it’s right for you and will discuss openness around donor treatment.
  • Chair of the Association of Clinical Embryologists Jason Kasraie will look at the latest new techniques and technologies in the fertility world and consider evidence is as to whether they work and discuss the factors that influence the chances of successful treatment.
  • Fertility counsellor and Chair of the British Infertility Counselling Association Angela Pericleous-Smith will discuss the pressures on yourself, your relationships and your friendships. She will explore coping strategies and explain how to manage anxieties.
  • Fertility specialist Ephia Yasmin will be explaining all you need to need to know about egg freezing including the chances of success, as well as looking forward to future developments in egg freezing.
  • Women’s Voices Lead at the Royal College of Obstetricians and Gynaecologists Kate Brian explores why people chose to go overseas and looks at the risks and benefits. She will give some tips to consider when you are making a decision.
  • The HFEA’s Jo Triggs will explain what to look for when choosing a clinic, what statistics can and can’t tell you and will explore the other factors you should take into account.
  • Fertility Fest founder Jessica Hepburn will chair a session with Gateway Women’s Jody Day, authors Lesley Pyne and Yvonne John and the Dovecot’s Kelly Da Silva who have all helped to change the way we think about living without children. They will discuss how to find peace and happiness after unsuccessful treatment, and will talk about the societal attitudes to childlessness that need changing.
  • Professor Adam Balen is a leading specialist in PCOS and will discuss the causes of this common cause of fertility problems. He will discuss how PCOS should be investigated and treated and will also look at ways that you can help yourself.
  • If you want to know more about IVF, fertility specialist Jane Stewart will explain what assisted conception is and why it doesn’t always work. She will talk about the limitations of IVF and why it may not always be the right treatment.
  • One of the UK’s leading embryologists, Rachel Cutting will explain how embryos develop from fertilisation to blastocyst. She will look at how embryos are graded and selected, and will explore how time-lapse can help. She will also talk about embryo freezing.
  • Men often get overlooked when it comes to fertility support. Richard Clothier has been a leading voice for men’s experiences of fertility problems. He will focus on men and fertility, and the importance of talking as well as exploring tips for mitigating the grief.
  • Is your lifestyle having an impact on your fertility? Grace Dugdale is a reproductive biologist and nutrition scientist and will give evidence-based information about health, diet and lifestyle in relation to male and female fertility. She will talk about what can impact your fertility, and about preparing your body for pregnancy.
  • IVF treatment is usually more like a marathon than a sprint. Emotional and financial resilience are crucial to continuing the journey, and there can be pressure to pay for additional tests, drugs or interventions which may not increase the chances of success. Fertility specialist Professor Yacoub Khalaf will discuss what’s worth paying for and what isn’t.
  • Are you eligible for NHS funded fertility treatment? There are guidelines from the National Institute of Health and Care Excellence (NICE) on who should qualify, but these are often ignored. Sarah Norcross from Fertility Fairness and Aileen Feeney from Fertility Network UK will explain the current funding situation and what you should be entitled to.
  • Psychology Professor Jacky Boivin explains stress, and what evidence there is about the impact it may have on fertility. She will also discuss strategies for coping with stress.
  • What is ovarian reserve testing and what does it mean? Fertility specialist Melanie Davies will look at ovarian testing and what it can and can’t tell you. She will explain the realities of having fertility treatment when you are older and what this means for the chances of success.
  • One of the UK’s leading fertility lawyers, Natalie Gamble,will discuss the legal situation regarding parenthood for sperm and egg donation. She will explain surrogacy law and practice, recent developments and law reform.

You can choose which of these amazing sessions to attend – tickets for the day are now available at £25 which covers the costs of putting on the day. You can find out more and book your tickets here – https://bit.ly/FertilityForum

 

 

Thank you Fertility Fest!

I have spent the past few days at Fertility Fest at the Bush Theatre in London, and wanted to thank Jessica Hepburn and Gabby Vautier for organising such a wonderful and inspiring event. It was a unique opportunity for people affected by fertility problems and treatment, for those working in the fertility sector, for those who have families not created in the traditional way, for academics and for the general public to come together and to learn and be inspired. It was absolutely fabulous!

I met amazing artists and so many inspiring and interesting people doing all kinds of different work to help and support others in different ways. It was a real honour to be involved. A special thank you to the lovely Saskia Boujo and everyone I shared a panel with – artist Gina Glover, Dr Kay Elder, Sally Cheshire, Dr Roy FarquharsonMaria Da Luz Ghoumrassi, Dr Shantel Ehrenberg, Barbara Scott, Jane Denton, Anna Furse, Nina Klaff, Drunken Sailor Theatre Company, Victoria Macdonald, Foz Foster, Tabitha Moses, Professor Lesley Regan, Professor Simon Fishel, Yvonne John, Sue Macmillan, Carmel Dennehy, Tracey Sainsbury, Fiona Duffelen – to Paula Knight who was unable to be with us but sent a video – and of course, to those wonderful women Jessica and Gabby who have created something really very special!

Fertility Education

Congratulations to the brilliant team at the Fertility Education Initiative for getting the subject of fertility education on the agenda. It was fabulous to see the subject covered on the front page of The Times, and also covered in the Sun and the Mail. The Fertility Education Initiative’s Jessica Hepburn and Professor Joyce Harper even featured on the Victoria Derbyshire show talking about this.

It’s such an easy subject to misunderstand or misinterpret – and people are often worried that talking to young people about infertility will mean they assume they don’t need to worry about contraception. In fact, this couldn’t be further from the truth as fertility education is about ensuring young people really understand and are fully informed about their own fertility. All too often, women who find they’ve left themselves a fairly small window of opportunity to conceive feel that they weren’t fully informed about their own reproductive clock or about the limits of fertility treatment.

You can read more about the Fertility Education Initiative here where you can also find answers to some common questions, and see a video of the Fertility Education Initiative’s Health Summit Choice Not Chance held in 2016.

Fertility Fest 2018

It was great to be at the launch of Fertility Fest 2018 this morning, the fertility arts festival organised by Jessica Hepburn and Gabby Vautier-Farr. We were treated to inspiring words from Jessica and Gabby and an exciting extract of the sort of thing we can expect to enjoy during the festival. You can see the line-up for this year’s festival on the website – www.fertilityfest.com and you can buy tickets now too. I’m already really excited about this year’s festival – there are some amazing artists and expert and fascinating discussions. Make sure you get a ticket before they all sell out – and I hope to see you there!

Congratulations Jessica!

I went to watch the London Marathon yesterday which I do every year as it passes near where I live. It’s always inspiring to see so many people who are doing such a remarkable thing to raise money for charities, often those close to their own hearts. This year, I was particularly hoping to cheer on Jessica Hepburn who was running to raise funds for Fertility Network UK – although I missed her in the crowds, I was able to keep track of her amazing run on the Marathon app. Jessica, who does so much fantastic work in this field, did so well and if you haven’t already, there is still time to sponsor her. The website for donating has been very busy so if you don’t get through right away, do go back later!

Running a marathon really is a huge feat, and so I wanted to congratulate not just the brilliant Jessica, but also my other marathon-running friends – running inspiration Sarah from Greenwich Runners, Liz and Patrick who crossed the finishing line together and the incredibly super speedy Dr Kate – well done to you all!

Celebrating International Women’s Day

It’s International Women’s Day and a good opportunity to celebrate some of the things that women do for one another in fertility. I was thinking of some of the women who have done and continue to do so much to change things in this field, and wanted to thank a few of them.

The first is Clare Lewis-Jones, the former Chief Executive of the charity Fertility Network UK. Clare led the charity as it grew in size and influence and was a presence at every fertility conference and event, reminding professionals of the need to think about the patient perspective. She championed the cause and helped to change the way people think about fertility, removing some of the stigma and encouraging us to talk, in part by being open about her own fertility story. Clare was awarded a much-deserved MBE for her work and was a real inspiration to me.

The second is Jessica Hepburn, who wrote a book about her own experiences of fertility problems and treatment and who went on to set up Fertility Fest. Jessica is an amazingly inspiring person who has swum the Channel and is now running the marathon to raise funds to help to support other people going through fertility problems. She has spoken widely and openly about how it feels to have unsuccessful treatment and has enabled many other people to talk about this.

My third is someone you may not know. She is called Diane and she runs the support line at Fertility Network UK. Diane is a nurse and has been answering calls and responding to emails from fertility patients for as long as I can remember. Every time I’ve suggested that anyone might benefit from giving her a call, they’ve been really touched by her kindness and helped so much by the support and advice she has offered. Diane has been at hand for hundreds of fertility patients on their journeys and is a real inspiration with her positivity and generosity of spirit.

These are just three women – there are so many more I can think of out there who are doing remarkable work to support and encourage, to inspire and inform. There are also all those women who support one another every day just by being there for each other, by showing their understanding and offering words of encouragement to their fellow fertility patients. The importance of that support should never be underestimated. Happy International Women’s Day to you all!

The Fertility Show goes to Manchester

Did you know that the Fertility Show will be in Manchester next month? The event which has taken place at London’s Olympia for many years is spreading its wings and will be held at Manchester’s Central Convention Complex in Windmill St on March 25 and 26.

There will be a wide range of speakers including Allan Pacey,  Geeta Nargund, British Fertility Society Chair Adam BalenCharles KingslandSimon Fishel, John Parsons, Rachel Cutting, Jane Stewart, Raj Mathur, Tony Rutherford and Zita West. The HFEA’s Juliet Tizzard will also be speaking as well as specialist lawyer Natalie Gamble and Fertility Fest Director Jessica Hepburn. The sessions will cover a wide range of topics suitable to those just starting out and wanting to know more about their fertility through to more detailed sessions on specific fertility problems and treatment options. There will also be a separate platform for Q and A sessions and a wide range of exhibitors.

Tickets are now on sale here so do come along if you are nearby – I will be there too speaking about how to choose a fertility clinic and will be on the Fertility Network UK stand so come and say hello!

Running for the right to try

If you read this blog at all regularly, it won’t have escaped you that I am a huge fan of the brilliant Jessica Hepburn, Director of Fertility Fest and author of The Pursuit of Motherhood. You may have followed her Channel Swim to raise funds for Fertility Network UK, and now she’s doing it again with the London Marathon.

Jessica has written a fantastic blog post about this and if you want to read more about what she’s doing and why, you can find it here. There’s also a link to her JustGiving page where you can make a donation to support her through her 26 miles. For me, 10k feels like a marathon, and I think it’s a wonderful thing that she is doing – so support her if you possibly can and help to make it even more worthwhile.

National Portrait Gallery Exhibition

If you are in London, you may be interested in an exhibition of photographs at the National Portrait Gallery – the Taylor Wessing photographic Portrait Prize 2016.

Two of the photos were taken by Katie Barlow, a documentary film-maker who is currently working on a fantastic documentary about not having children which features author and Director of Fertility Fest, Jessica Hepburn, who many of you will be familiar with and Gateway Women’s Jody Day. Katie has spent the last year documenting the refugee crisis, and you can see two of her photos in the National Portrait Gallery exhibition. You can read what Katie wrote about this here  – and the exhibition is definitely worth a visit!