We’ve just had a request for people who might be interested in taking part in a focus group to talk about their experiences of fertility problems from Dr Shantel Ehrenberg, a Lecturer in Dance and Theatre, who is leading a research study to investigate and increase awareness of women’s often silent emotional and physical experiences of getting a diagnosis of fertility problems.
She is not a clinician, so there will be no medical information and this isn’t a clinical study, but Shantel is interested in understanding women’s experiences of infertility and sharing her findings with medical professionals and the society-at-large. She wants to use your experiences to help to inform a performance lecture as part of this research. A performance lecture is a thirty-minute presentation that includes text, movement, and visual imagery, presented at conferences and workshops, to help raise awareness about women’s experiences of fertility problems.
The current research project is funded by a University of Surrey Pump Priming Award and approved by the University’s Institutional Ethics Committee. Compensation is offered for taking part (£25).
The focus group would be about 90 minutes and include a brief introduction of the project. The meeting will take place in central London. If you want to know more or are interested in taking part you can contact Shantel by email email@example.com or phone 01483683137
At Fertility Network UK, we have set up a new online group for people who are pregnant after fertility treatment.
Whether you’ve just had a positive pregnancy test or are further down the line, you may be interested in joining our new group which will get together online. If you would like to join the group or to find out more about it, please contact firstname.lastname@example.org
Do you think clinic staff get it right when it comes to breaking bad news to fertility patients? And how do you think that could be improved? Are staff too blunt? Or not blunt enough?
I’ve met so many patients who have felt that things weren’t always handled in the best way, and I’d be keen to find out more about where you think things may go wrong – and what you think might work better.
I’d be really interested to know what you think – you can leave a comment below or use the contact form if you would like to send a private response – http://fertilitymatters.org.uk/contact/
The Daisy Network, the support group for women with premature ovarian insufficiency, is holding a conference on Saturday 10th June at Chelsea and Westminster Hospital. They have speakers covering a wide range of topics including HRT, fertility, sexual health and nutrition. There will also be an Ask the Experts session and plenty of opportunity to meet other members.
It promises to be an interesting day, and tickets cost £15 for members and £20 for non-members. including lunch and break-time refreshments. You can buy tickets here
A fertility clinic in the US has recently held a lottery offering a number of free cycles of IVF – which was a good PR exercise for the clinic itself. I’ve just been reading an article about this and was surprised to discover that the “free” cycle didn’t actually include the cost of any drugs (which, as anyone who has been through treatment will know, are extremely pricey). Nor did it include any additional treatments such as PGD or sperm freezing should they be needed. Entrants also had to be under the age of 43.
The lottery was drawn live on Facebook, 30 winners from the 500 or so entrants which seems a small number given what was on offer. But perhaps not, as they also had to agree to forfeit their right to anonymity as the names and locations of winners would be announced during the live draw.
This was carried out for the US National Infertility Awareness Week and whilst the sentiments may appear honourable, the idea of winners having to agree to let the world know about their fertility problems is something I struggle with – as is the concept of a prize which involves spending hundreds of pounds…
Thanks to The Guardian’s Hadley Freeman for this article about her experience of miscarriage. It is raw, honest and very moving, and she raises important questions about why it is that we don’t talk abut miscarriage. Why is it that women are often encouraged not to mention that they are pregnant until they reach 12 weeks because of the risk of miscarriage? It assumes that we would want to keep losing a baby secret, that it is something to be hidden and not talked about. For some people, this may make things easier but for many others, not being able to talk about something so heartbreaking can make it even harder to cope.
Miscarriage is devastating whenever it happens in pregnancy – and if you’ve taken time to get pregnant in the first place, it can feel even more overwhelming. If you, or anyone you know, is affected by miscarriage, the Miscarriage Association, can offer support and advice and is a really helpful source of information.
Today is International Nurses’ Day, so I thought I’d dedicate this post to fertility nurses. When people think about different fertility clinics, there’s always a focus on the consultants when in fact although they are in charge of a patient’s care, they may do very little of the day-to-day care during a cycle of treatment. It’s often the consultants who attract patients to one clinic or another, and yet it may be the nurses who can make a real difference to how you feel during your fertility treatment.
Different clinics have different ways of working, but nurses may carry out scans and check bloods as well as doing much of the more practical dealing with fertility patients. More often than not, a fertility nurse will teach you how to do your injections, will talk to you about how you are feeling, will be there at the end of the phone as a first port of call for your questions or queries. It’s also the fertility nurses who may notice when you are finding it hard to cope and who may suggest a session with the clinic counsellor.
So today, let’s say thank you to the fertility nurses who do so much to help fertility patients but take so little of the credit…
If you’re in or near London, there’s an event later this month which may be of interest presenting the work to date of a project called Conceiving Histories, which looks at what the researchers call “the history of un-pregnancy” – so trying to conceive and the politics of childlessness in the past as well as the ambiguity of early pregnancy diagnosis.
It is funded by Birkbeck, University of London and the Wellcome Trust and aims to identify and research case studies from different historical moments. At this particular event they will be looking at pregnancy diagnosis today and in the past.
It will take place on Wednesday 17 May and it is free to attend but you need to book – further details here.
It’s the final day of National Infertility Awareness Week in the US and there are still lots of ways to get involved. Check out the website for events like the Walk of Hope if you live in the States, but those who don’t you can still support the week on social media using the hashtags #ListenUp #NIAW to help raise the profile of the week and the cause.
This year’s theme is “Listen Up!” and RESOLVE, the US support network, is hoping that anyone who cares about infertility can feel empowered to do something that makes a difference, either in your own family building journey or to help someone else. They are calling on everyone to “Listen Up!” and become part of the movement.
Every so often there’s an article like this one in today’s Guardian, about “twins” born years apart… The writer of this piece has a son and daughter born as a result of one fresh IVF cycle and a further frozen embryo transfer from the same batch of embryos.
It is a fortunate, yet far from uncommon, experience after fertility treatment, but it doesn’t make the children “twins”. Twins are two babies who are carried together and born at the same time, which these children were not. They are siblings rather than twins.
The Guardian seem to specialise in this myth – here are some previous twins who were born five years apart, although at least that time they called them “twins” in the headline… Those were also covered by the Telegraph. And unsurprisingly the Daily Mail likes them too – these brothers born two years apart are “technically” twins according to the Mail – in fact, they are technically not twins. It is always made to sound as if it is some extraordinary and highly unusual matter, yet there are hundreds of thousands of siblings around the world who will have been conceived in a similar way.
Maybe I’m getting pedantic in my old age…