There’s a very exciting opportunity to help inform the new curriculum for specialist doctors who are training in gynaecology and obstetrics. The Royal College of Obstetricians and Gynaecologists is looking for a range of people to join a new public insight group to help identify the communication skills and clinical knowledge that doctors need to give the best possible care.
The curriculum is updated every so often to ensure that new evidence or technology is taken into account, and the RCOG is committed to involving people who use services in all aspects of their work. Although the expertise of experienced doctors is vital, it is just as important to involve service users to hear what knowledge and skills they feel specialists of tomorrow should have.
The Public Insight Group will aim to include people from across the UK with a variety of needs and experiences. It may also include representation from individuals who have particular understanding of the needs of specific communities and can represent the experiences and needs of those groups effectively. There will be a core group of around 20 people who will meet face-to-face for an initial workshop session. After this, the group will be coordinated mainly by email as the new curriculum develops.
A wider consultation group will bring a broader pool of views into the project. This group will only be involved by email. Both the core and the wider group will play a crucial role in informing the new curriculum over the next year. Both groups will be communicated with regularly to gain insight and feedback will be given to members about how the new curriculum is progressing.
For more details about what is involved and to see whether this is something you may be interested in, see here
Thanks to The Guardian’s Hadley Freeman for this article about her experience of miscarriage. It is raw, honest and very moving, and she raises important questions about why it is that we don’t talk abut miscarriage. Why is it that women are often encouraged not to mention that they are pregnant until they reach 12 weeks because of the risk of miscarriage? It assumes that we would want to keep losing a baby secret, that it is something to be hidden and not talked about. For some people, this may make things easier but for many others, not being able to talk about something so heartbreaking can make it even harder to cope.
Miscarriage is devastating whenever it happens in pregnancy – and if you’ve taken time to get pregnant in the first place, it can feel even more overwhelming. If you, or anyone you know, is affected by miscarriage, the Miscarriage Association, can offer support and advice and is a really helpful source of information.
If you’re in or near London, there’s an event later this month which may be of interest presenting the work to date of a project called Conceiving Histories, which looks at what the researchers call “the history of un-pregnancy” – so trying to conceive and the politics of childlessness in the past as well as the ambiguity of early pregnancy diagnosis.
It is funded by Birkbeck, University of London and the Wellcome Trust and aims to identify and research case studies from different historical moments. At this particular event they will be looking at pregnancy diagnosis today and in the past.
It will take place on Wednesday 17 May and it is free to attend but you need to book – further details here.
It’s the final day of National Infertility Awareness Week in the US and there are still lots of ways to get involved. Check out the website for events like the Walk of Hope if you live in the States, but those who don’t you can still support the week on social media using the hashtags #ListenUp #NIAW to help raise the profile of the week and the cause.
This year’s theme is “Listen Up!” and RESOLVE, the US support network, is hoping that anyone who cares about infertility can feel empowered to do something that makes a difference, either in your own family building journey or to help someone else. They are calling on everyone to “Listen Up!” and become part of the movement.
If you’re trying to conceive, you will be aware of your ovarian reserve but when you are starting out on your fertility journey, this isn’t something you will have come across before. Our potential to produce eggs declines as we get older, but the rate at which this happens is different for everyone – so some women may be diagnosed with a low ovarian reserve in their thirties or even twenties, which often comes as a real surprise as there may be no other signs of any decline in fertility at all.
If you want to know about your ovarian reserve, I was interviewed about the emotional impact by Allie Anderson for an article for NetDoctor the other day which you can read online here. It is important that we talk about this issue more often and more openly. Fertility specialists may suggest using donor eggs if they feel the ovarian reserve is so low that IVF is unlikely to be successful, but for women this may seem a huge and unexpected step and is certainly one which needs thought and counselling.
Anyone who is using donor eggs or sperm will find it useful to contact the Donor Conception Network who can provide information, help and support.
The patient support charity Fertility Network UK has announced two new support groups which have been set up recently in Lancashire/Cumbria and in Hull.
I know many people don’t like to think that they might need a “support group” but what is so invaluable about the groups is being able to meet up with other people who are going through similar things and to share experiences. It really can be such a huge relief just to know that there are other people out there finding it hard to be happy when a close friend announces a pregnancy, or who take long detours to avoid the local nursery at pick up and drop off times. Going along to a group is a sign of strength rather than suggesting that you need more support than other people and if you see it that way, it can be a useful – and free – way of helping yourself through treatment.
For more information about the Lancashire/Cumbria group, please email email@example.com and for the Hull group, you can email firstname.lastname@example.org.
You can find a list of all the other Fertility Network UK groups on their website here. There really is nothing to lose by going along once and seeing what you think – you may find it helps far more than you expected!
There have been a couple of interesting items on egg freezing in the last few days. The first is a piece from the Telegraph, based around a BBC Radio 4 documentary about egg freezing presented by Fi Glover which looks at the reality of egg freezing. It’s definitely worth a read – and a listen – as it looks at why people consider egg freezing and asks whether the promises it offers are a reality.
At the same time, the Guardian’s Mariella Frostrup was answering a dilemma in a letter from someone who felt angry and let down by a friend who had suggested that she shouldn’t bother freezing her eggs at 35 as she was now 40, wanting a baby and had been told she had possibly left it too late. What was most interesting about this was the completely misplaced certainty that she would have been able to have children had she frozen her eggs, when in fact as Fi Glover’s programme and the Telegraph article explain, this may be very far from the case.
There is a huge media interest in egg freezing, and this is an interesting discussion whatever your point of view…
It’s International Women’s Day and a good opportunity to celebrate some of the things that women do for one another in fertility. I was thinking of some of the women who have done and continue to do so much to change things in this field, and wanted to thank a few of them.
The first is Clare Lewis-Jones, the former Chief Executive of the charity Fertility Network UK. Clare led the charity as it grew in size and influence and was a presence at every fertility conference and event, reminding professionals of the need to think about the patient perspective. She championed the cause and helped to change the way people think about fertility, removing some of the stigma and encouraging us to talk, in part by being open about her own fertility story. Clare was awarded a much-deserved MBE for her work and was a real inspiration to me.
The second is Jessica Hepburn, who wrote a book about her own experiences of fertility problems and treatment and who went on to set up Fertility Fest. Jessica is an amazingly inspiring person who has swum the Channel and is now running the marathon to raise funds to help to support other people going through fertility problems. She has spoken widely and openly about how it feels to have unsuccessful treatment and has enabled many other people to talk about this.
My third is someone you may not know. She is called Diane and she runs the support line at Fertility Network UK. Diane is a nurse and has been answering calls and responding to emails from fertility patients for as long as I can remember. Every time I’ve suggested that anyone might benefit from giving her a call, they’ve been really touched by her kindness and helped so much by the support and advice she has offered. Diane has been at hand for hundreds of fertility patients on their journeys and is a real inspiration with her positivity and generosity of spirit.
These are just three women – there are so many more I can think of out there who are doing remarkable work to support and encourage, to inspire and inform. There are also all those women who support one another every day just by being there for each other, by showing their understanding and offering words of encouragement to their fellow fertility patients. The importance of that support should never be underestimated. Happy International Women’s Day to you all!
If you’ve been looking at fertility websites or forums (I think it should be “fora” but that sounds too weird), you may have been confused by the abbreviations…
They crop up throughout posts, and at first it can seem as if people are speaking an entirely different language when they talk about TTC (trying to conceive) and being on their 2ww (two week wait) hoping for a BFP (big fat positive – a positive pregnancy test).
Here is a brief guide to some common abbreviations for anyone who may a little help with translation…
A/F = Aunt Flo (period)
AH = Assisted hatching
AI = Artificial insemination
AIH = Artificial insemination by husband
AMH = Anti mullerian hormone
ART = Assisted reproductive technique
BBT = Basal body temperature
BFN = Big fat negative
BFP = Big fat positive
BICA = British Infertility Counselling Association
CD = Cycle day
DE = Donor eggs
DHEA = Dehydroepiandrosterone (a hormone which some believe can be beneficial for women with a low ovarian reserve)
DI = Donor insemination
DH = Darling husband
DPO = Days post ovulation
DPR = Days post retrieval
DP = Darling partner
DPT = Days post transfer
DS = Donor sperm
EC = Egg collection
ENDO = Endometriosis
ET = Embryo transfer
FER = Frozen embryo replacement
FET = Frozen embryo transfer
FP = Follicular phase
FSH = Follicle stimulating hormone
HCG = Human chorionic gonadotropin
HFEA = Human Fertilisation & Embryology Authority
HPT = Home pregnancy test
HRT = Hormone replacement therapy
HSC = Hysteroscopy
HSG = Hysterosalpingogram
ICSI = Intra-cytoplasmic sperm injection
IMHO = In my humble opinion
IMO = In my opinion
IUI = Intra-uterine insemination
IVF = In vitro fertilisation
IYKWIM = If you know what I mean
LAP = Laparoscopy
LH = Luteinising hormone
LMP = Last menstrual period
LP = Luteal phase
LPD = Luteal phase defect
M/C = Miscarriage
OI = Ovulation induction
OHSS = Ovarian hyperstimulation syndrome
OPK = Ovulation predictor kit
PCOS = Polycystic ovary syndrome
PESA Percutaneous epididymal sperm aspiration
PG = Pregnant
PI = Primary infertility
PID = Pelvic inflammatory disease
PMS = Pre-menstrual syndrome
POF = Premature ovarian failure
SI = Secondary infertility
TESA = Testicular sperm aspiration
And finally HTH (hope that helps)!
I know from running support groups that there’s a lot of interest in the idea of ‘clean eating’ and fertility – and the recent Fertility Network UK patient survey showed that 75% of respondents had changed their diets because of their fertility problems.
Of course, it makes sense to eat healthily if you are having difficulty getting pregnant or going through treatment – it is good for you, it makes you feel better about yourself and you really wouldn’t want to be living on beer and chips. However, so many fertility patients I see are on diets that can start to feel incredibly restrictive, and that may not be a good thing.
I always remember interviewing someone who’d been following a strict diet for her fertility who said she suddenly realised it was making her really miserable and dominating her life. She concluded that actually being happy was probably more important than not ever eating a biscuit or drinking a cup of tea (builders as opposed to herbal of course).
I think she was absolutely right. There is nothing worse than feeling constantly guilty. I have seen people who end up blaming themselves for their fertility problems because they like ice cream or having a glass of wine when they are out with friends. These things in moderation are really not going to stop you getting pregnant. This article from The Spectator may be of interest!