Men can often feel rather left out when it comes to fertility treatment – and the support available to couples can often seem very female-focused. Now, a team from Leeds Beckett University have partnered with Fertility Network UK to try to find out more about men’s experiences of fertility problems. They believe not enough is known about how men cope with fertility issues and will use the results of the research to help to raise awareness of men’s needs.
They will also produce a report at the end of the study and present the findings to health care professionals to ensure that the male perspective is taken into consideration in fertility clinics and in fertility counselling settings.
This survey is completely anonymous so please do fill it in – or get your partner to – and ensure that the researchers get a good response and can start to encourage changes in the support for men during treatment.
A new survey of fertility patients looking at overseas treatment carried out for Fertility Network UK and the website Fertility Clinics Abroad has unsurprisingly found that cost is the major reason why people travel for treatment. Of those who responded to the survey, nearly 80% said fertility treatment in the UK cost twice as much as they were willing or able to pay and 68% said that they would travel for treatment because IVF overseas was generally cheaper.
When people first started travelling overseas for fertility treatment, it was often to access donor eggs but according to this survey most of the respondents were using their own eggs for IVF treatment abroad. The survey found that people believe that treatment can often be offered more quickly abroad. There was also a perception that the standard of care was better overseas with clinics offering a more personalised approach.
Interestingly many were also attracted by the apparently high success rates overseas, but some respondents had noticed that these rates could be confusing and misleading. A majority had said a centralised database of all overseas clinic success rates would be welcome but it would be very hard to verify these rates. Some overseas clinics claim success rates of more than 80% for women using their own eggs for IVF, and it is important to be clear that these rates are not comparable with the figures you will get from a UK clinic as they are using different criteria, are not always including all the patients treated at the clinic and may be giving rates for positive pregnancy tests rather than for live births.
Almost a quarter of respondents wanted to go overseas because they would have access to anonymous donors and it would have been very interesting to find out why they felt this was an advantage – did they feel it was linked to a larger pool of available donors or was it the anonymity itself which was attractive, and if so why. So, a survey which provides some interesting information – and also raises many questions! You can read more details about it here
I went to watch the London Marathon yesterday which I do every year as it passes near where I live. It’s always inspiring to see so many people who are doing such a remarkable thing to raise money for charities, often those close to their own hearts. This year, I was particularly hoping to cheer on Jessica Hepburn who was running to raise funds for Fertility Network UK – although I missed her in the crowds, I was able to keep track of her amazing run on the Marathon app. Jessica, who does so much fantastic work in this field, did so well and if you haven’t already, there is still time to sponsor her. The website for donating has been very busy so if you don’t get through right away, do go back later!
Running a marathon really is a huge feat, and so I wanted to congratulate not just the brilliant Jessica, but also my other marathon-running friends – running inspiration Sarah from Greenwich Runners, Liz and Patrick who crossed the finishing line together and the incredibly super speedy Dr Kate – well done to you all!
Thanks to Carole Bonner, Chair of Croydon Council’s health and social care scrutiny sub-committee, and her fellow members who have called on the government to stop cuts to all funding for IVF in the area. They sent a letter to the Secretary of State for Health, Jeremy Hunt, asking him to look at the decision to cut all funding made by the local Clinical Commissioning Group.
It is the first time that a decision has been challenged in this way and the Committee was concerned that the impact of the decision to remove access to fertility treatment would mean that those in the most deprived, low-income areas will be unable to afford to have IVF. A consultation carried out locally by the Clinical Commissioning Group showed that 77% of almost 800 respondents thought the funding should be retained.
Councillor Carole Bonner said “We’re making this referral because of the potential long-term adverse health effects the removal of IVF will have on Croydon residents. Not only can infertility result in family breakdown and the ending of relationships, it often has an impact on the mental health of those affected. A comprehensive study was carried out by Middlesex University and the Fertility Network that showed a clear correlation between infertility and depression, with 90% experiencing depression. The committee is acutely aware of, and has sympathy for, the CCG’s underfunding and the inconsistencies of the funding formula when compared to similar authorities. However, we feel that the effects of the withdrawal of IVF funding in Croydon are not in the best interests of the borough’s residents.”
Whatever the outcome, it is heartening to see a local Council appreciating the huge impact that cutting fertility services can have for a relatively small saving – so thanks to Croydon and let’s hope that others are inspired to follow their example.
The patient support charity Fertility Network UK has announced two new support groups which have been set up recently in Lancashire/Cumbria and in Hull.
I know many people don’t like to think that they might need a “support group” but what is so invaluable about the groups is being able to meet up with other people who are going through similar things and to share experiences. It really can be such a huge relief just to know that there are other people out there finding it hard to be happy when a close friend announces a pregnancy, or who take long detours to avoid the local nursery at pick up and drop off times. Going along to a group is a sign of strength rather than suggesting that you need more support than other people and if you see it that way, it can be a useful – and free – way of helping yourself through treatment.
For more information about the Lancashire/Cumbria group, please email email@example.com and for the Hull group, you can email firstname.lastname@example.org.
You can find a list of all the other Fertility Network UK groups on their website here. There really is nothing to lose by going along once and seeing what you think – you may find it helps far more than you expected!
Just a quick reminder for anyone living in or near Manchester that the Fertility Show will be held there this weekend. It’s the first Fertility Show outside London and you can find full details and buy tickets here. You will find a great range of seminars covering a range of fertility-related topics, and a Q and A stage too where you can ask your own questions.
I’ll be speaking about how to choose a fertility clinic and will be at the Fertility Network UK stand for most of the day on Saturday – so do come and say hello!
It’s International Women’s Day and a good opportunity to celebrate some of the things that women do for one another in fertility. I was thinking of some of the women who have done and continue to do so much to change things in this field, and wanted to thank a few of them.
The first is Clare Lewis-Jones, the former Chief Executive of the charity Fertility Network UK. Clare led the charity as it grew in size and influence and was a presence at every fertility conference and event, reminding professionals of the need to think about the patient perspective. She championed the cause and helped to change the way people think about fertility, removing some of the stigma and encouraging us to talk, in part by being open about her own fertility story. Clare was awarded a much-deserved MBE for her work and was a real inspiration to me.
The second is Jessica Hepburn, who wrote a book about her own experiences of fertility problems and treatment and who went on to set up Fertility Fest. Jessica is an amazingly inspiring person who has swum the Channel and is now running the marathon to raise funds to help to support other people going through fertility problems. She has spoken widely and openly about how it feels to have unsuccessful treatment and has enabled many other people to talk about this.
My third is someone you may not know. She is called Diane and she runs the support line at Fertility Network UK. Diane is a nurse and has been answering calls and responding to emails from fertility patients for as long as I can remember. Every time I’ve suggested that anyone might benefit from giving her a call, they’ve been really touched by her kindness and helped so much by the support and advice she has offered. Diane has been at hand for hundreds of fertility patients on their journeys and is a real inspiration with her positivity and generosity of spirit.
These are just three women – there are so many more I can think of out there who are doing remarkable work to support and encourage, to inspire and inform. There are also all those women who support one another every day just by being there for each other, by showing their understanding and offering words of encouragement to their fellow fertility patients. The importance of that support should never be underestimated. Happy International Women’s Day to you all!
Did you know that the Fertility Show will be in Manchester next month? The event which has taken place at London’s Olympia for many years is spreading its wings and will be held at Manchester’s Central Convention Complex in Windmill St on March 25 and 26.
Tickets are now on sale here so do come along if you are nearby – I will be there too speaking about how to choose a fertility clinic and will be on the Fertility Network UK stand so come and say hello!
Jessica has written a fantastic blog post about this and if you want to read more about what she’s doing and why, you can find it here. There’s also a link to her JustGiving page where you can make a donation to support her through her 26 miles. For me, 10k feels like a marathon, and I think it’s a wonderful thing that she is doing – so support her if you possibly can and help to make it even more worthwhile.
If you’re concerned by the postcode lottery for fertility treatment, you can join the Fertility Network UK Day of Action on 25 March. You don’t have to go out marching anywhere, but just a few small actions can make all the difference
There are three ways you can join in –
Contact your MP, Tell them how the postcode lottery is affecting you and what is happening in your local area. You can find out more about how to find your MP’s contact details and what you might want to say in an email or letter here on the Fertility Network UK website.
You can tweet your support using the hashtags #IVFx3 #tellyourMP #righttotry
Fertility guidelines from the National Institute of Health and Clinical Excellence (NICE) say that if you should be able to access 3 full cycles of NHS IVF if you under 40 and eligible for treatment, An overwhelming 98 per cent of England’s 209 local clinical commissioning groups (CCGS) do not follow this guidance fully and have either cut the number of IVF cycles they offer and ration services by introducing additional non-medical access criteria, such as denying IVF to individuals if their partner has a child from a previous relationship.
Do join in and help your charity to help you to make a difference!