It was great to be able to attend the rally at Westminster this evening organised by Fertility Network UK as part of their Scream4IVF campaign to try to push for fair funding for IVF based on the NICE guidelines, which conclude that it is both clinically effective and cost-effective to offer three full cycles of treatment to eligible women who are under the age of 40.
There were a range of excellent speakers at the rally including Fertility Network UK’s Chief Executive, Aileen Feeney, and London Organiser, Anya Sizer. They were joined by Paula Sherriff MP, Steve McCabe MP and author and Director of Fertility Fest Jessica Hepburn as well as Damion Sizer giving a male point of view and the brilliant Hope Sizer talking from the perspective of someone conceived by IVF.
It was an inspiring rally, and ended with some of the recorded screams (which were very loud!) and an opportunity to Scream for IVF ourselves. If you haven’t already signed the campaign petition to get a parliamentary debate on IVF, it’s not too late – you can find it here
Today is World Mental Health day, and a good time to think about the mental health impact on fertility problems, tests and treatment. All too often, there’s an attitude from those with no experience of infertility that it isn’t a really serious problem, and yet anyone who has been through this themselves will be only too aware of the way it can impact on your health.
A survey for the patient charity Fertility Network UK and Middlesex University found that respondents reported feeling sad, frustrated, fearful and worried, out of control and helpless most of the time. They often felt stressed, tearful, inadequate, angry, isolated, despairing, depressed, guilty or shamed and experienced low confidence and concentration and a loss of sex driven. They also felt unsupported. Even more alarmingly, 42% of respondents said that they had experienced suicidal feelings.
If you are going through treatment and are finding it tough, there is help and support out there. The patient charity Fertility Network UK offers free group meetings around the country where meeting with other people going through similar experiences can be hugely helpful, and have a support line and online forum too. The British Infertility Counselling Association has a host of specialist counsellors ready to help with emotional support, and you can also talk to your GP if you are feeling in need of counselling. Don’t suffer alone.
I am sure you will all be aware of Fertility Network UK’s Scream4IVF campaign, aimed at ending the postcode lottery for IVF treatment. If you haven’t signed the petition yet which calls for a parliamentary debate on the subject you can do so here. The charity has been asking people to donate their scream on social media to give a voice to people with fertility problems and allow their frustrations to be aired. The screams will be collated to form the world’s longest scream for IVF to be played at a rally outside Westminster. The charity is encouraging people to join them at at the rally which takes place at Richmond Terrace at Westminster on October 10th from 5pm to 7pm.
There has been quite a debate about egg freezing after a call for the NHS to offer egg freezing for women of 30 to 35 as an insurance policy for their future fertility – you can read more about it here. Although the suggestion was supported by the patient charity Fertility Network UK, others didn’t agree, and Lord Winston warned that he felt women risked being exploited by the suggestion. The Royal College of Obstetricians and Gynaecologists has also called for caution where social egg freezing is concerned. It’s an interesting debate.
Perhaps freezing eggs might for some women save future heartache, but it’s still far from guaranteed that taking this option will result in a baby in the future. As anyone who has experience of IVF knows, having a good stock of eggs doesn’t bring any certainties, and women might need to go through a number of cycles of freezing to have eggs for the future. But could investing in egg freezing save the NHS money in the long run? An egg freezing cycle is essentially the same as an IVF cycle but split into different stages – so you are still harvesting eggs, fertilising them in the laboratory and then replacing them into the womb at a later date. So might you actually end up paying for IVF for women who might not ever need it? The reality is that the majority of people pay for their fertility treatment themselves, and perhaps sorting out the postcode lottery of funding for IVF in England would be a better first move as this is a medical treatment for people who have fertility issues, rather than a medical treatment for people who are trying to insure against having difficulties in the future. What do you think?
Last week, I had the honour of interviewing Lesley Pyne about her new book, Finding Joy Beyond Childlessness, at her book launch. Lesley went through six rounds of IVF, and spent many years feeling defeated by the experience of living without children – but eventually realised that stuffing her grief into a box and trying to keep a stiff upper lip wasn’t working. Finding Joy Beyond Childlessness is Lesley’s guide for anyone experiencing involuntary childlessness as she takes you through the process that allowed her to discover the happiness on the other side. There’s no short cut to this, and you have to let yourself experience the grief and sadness to come out the other side, but Lesley is a living testament to the fact that this works – and that there is joy to be found,
It was great to see so many people there for the book launch, including the team from Fertility Network UK (Lesley is pictured here with Fertility Network UK Chief Executive Aileen Feeney) and fellow author Jessica Hepburn.The guests included many of Lesley’s friends from More to Life, the part of Fertility Network UK which works with those who are living without children. It was a testament to those lasting friendships that Lesley – and many others – found through the organisation to see so many of the group Lesley first met when she first joined Moe to Life still there and offering their support.
Lesley’s motif is a butterfly and the tables of books were also covered in piles of beautiful butterfly biscuits, carefully colour-coded to match Lesley’s book cover and website.
Lesley works as a coach, supporting others through childlessness, and you can find her guide to a more fulfilling life in the book Finding Joy Beyond Childlessness which is available in paperback and for Kindle, and you can buy it via Amazon.
I’ve heard from so many people recently who are pregnant after fertility problems who are full of anxiety and feel their pregnancies, which ought to be joyful, are being tainted by the worries from the time spent trying to conceive. Women then blame themselves once again for not being “normal”, but this is a perfectly understandable response to finally finding yourself pregnant after fertility problems. You may find it hard to have faith that things are going to be all right when you have become so accustomed to them not being all right.
The other resource which may be helpful is a book I wrote because I felt so strongly about the lack of understanding for people who are pregnant after fertility problems. It’s called Precious Babies – Pregnancy, Birth and Parenting after Infertility and you can buy it from Amazon. It goes from the positive pregnancy test right through birth and early parenthood to interviews with adults conceived by IVF and I hope it helps you realise that you are not alone and that others feel the same way after fertility problems.
If you are interested in a role in the world of women’s health, there are some fabulous opportunities open at the moment. For anyone looking to volunteer, the Women’s Network which I chair at the Royal College of Obstetricians and Gynaecologists has some spaces. It’s a fantastic group of dynamic women committed to improving women’s health experiences, and members must be able to commit at least two full days at the College (in central London) every three months when meetings take place. New members of the Network will be expected to become involved in the work of a committees relating to RCOG’s work too, and to have regular email contact. It is a big ask, but it’s an extremely rewarding and interesting role and a chance to make a real difference. There are more details here
There are also two jobs at the charity Fertility Network UK. One is a short-term cover role for a co-ordinator for the charity for the whole of England, which is an amazing job. The other is for a co-ordinator for More to Life, the part of the charity which works for people who are childless, after stopping treatment or deciding not to have it – a really important role.There are some fabulous people working for the charity and you will have great colleagues. If you are interested, you can find out more here.
If you’re in South East London, tonight at 7pm at the Fertility Network UK office which is at 20 Egerton Drive Greenwich SE10 8JS, you can come along and meet Aileen Feeney, the Chief Exec of Fertility Network UK, who is going to talk briefly about what the charity does and the support it can offer. The office is near to Greenwich station and DLR. Hope to see you there! x
It’s one of those things people don’t even want to think about when they’re going through fertility treatment – what might happen if it didn’t work, ever? Could you really be happy if you didn’t end up with a baby? What would you do if all that time, effort, money and emotional investment led to nothing? Would your life ever feel fulfilled and enjoyable? Could the overwhelming sadness go away? I want to tell you about someone who is a brilliant example of the fact that life after IVF treatment can be both fulfilled and enjoyable. She’s called Lesley Pyne, and I first met her when I was a trustee for the charity which is now Fertility Network UK. Lesley was one of my fellow trustees, and had joined as she was involved with the section of the charity for people who were involuntarily childless known at the time as More to Life.
Today, I met Lesley for the first time for a while and it struck me that she looked about 10 years younger than she did when I last first knew her – which means she must look about 20 years younger than she really is! Her eyes were bright and shining, and her zest for life was almost palpable. Lesley, who always seemed to be making an effort not to stand out when we were fellow trustees, was dressed in bright colours with electric blue nails. She is happy, she is making the most of the good things in her life – and she has just written a book explaining how she went from feeling devastated by unsuccessful treatment to this confident, happy woman who gets the best out of her life – it’s due to be published in June and is called Finding Joy Beyond Childlessness.
It strikes me as we talk that Lesley has embraced something we could all learn from – living for the moment, focusing on the positives and making an effort to enjoy what we have. I haven’t read Finding Joy Beyond Childlessness yet – but she explained that it contains her story and those of a number of other women who have come out the other side of involuntary childlessness to find fulfilment. She says it is a journey, and it can be hard along the way, but that there is life beyond childlessness, there is more to life – and if you need help along that path, keep an eye out for Lesley’s book when it comes out in June.
Since 2009, the Lister Fertility Clinic has been offering a small number of free IVF cycles each year to try to help people who are unable to access NHS-funded fertility treatment. The cycles are offered in conjunction with the charity Fertility Network UK and there are some criteria for entering into the draw for the free cycles.
You have to be a UK resident under the age of 42, with a cause for your fertility problems. Your BMI must be in the normal range and you can’t have any children from your current relationship. You can’t have been sterilised in the past and you can’t have had a free cycle at the Lister before. There are also some restrictions on the type of treatment you can have, which can’t include egg donation.
You need to send your entry to Fertility Network UK – and you can find the details here