Fertility Forum speakers

Next month’s Fertility Forum promises to be an informative event for anyone who wants to know more about their fertility, tests and treatment options. The wide range of speakers will be covering topics across the board to ensure there is something for everyone whether you are just starting to think about your future fertility or have already had treatment. The full list of topics and speakers is now finalised:

  • Fertility specialist Raj Mathur will look at what can affect your chances of conceiving naturally, when and how to seek advice and will run through the tests you should have.
  • Miscarriage expert Professor Lesley Regan will cover the causes of miscarriage and why do some women experience recurrent miscarriage. She will discuss investigations and what can be done to help.
  • Fertility specialist Ertan Saridogan will give the low down on endometriosis and how it can affect fertility. He will cover all the options for treatment and how to choose between them.
  • Leading male fertility specialist Professor Allan Pacey will explain male fertility and how sperm are made. He will talk about what affects the number and quality of sperm that a man make and the tests that are used to diagnose male fertility problems, as well as the solutions that can be offered.
  • Director of the Donor Conception Network Nina Barnsley will explain what you need to think about when considering donor treatment, how to decide whether it’s right for you and will discuss openness around donor treatment.
  • Chair of the Association of Clinical Embryologists Jason Kasraie will look at the latest new techniques and technologies in the fertility world and consider evidence is as to whether they work and discuss the factors that influence the chances of successful treatment.
  • Fertility counsellor and Chair of the British Infertility Counselling Association Angela Pericleous-Smith will discuss the pressures on yourself, your relationships and your friendships. She will explore coping strategies and explain how to manage anxieties.
  • Fertility specialist Ephia Yasmin will be explaining all you need to need to know about egg freezing including the chances of success, as well as looking forward to future developments in egg freezing.
  • Women’s Voices Lead at the Royal College of Obstetricians and Gynaecologists Kate Brian explores why people chose to go overseas and looks at the risks and benefits. She will give some tips to consider when you are making a decision.
  • The HFEA’s Jo Triggs will explain what to look for when choosing a clinic, what statistics can and can’t tell you and will explore the other factors you should take into account.
  • Fertility Fest founder Jessica Hepburn will chair a session with Gateway Women’s Jody Day, authors Lesley Pyne and Yvonne John and the Dovecot’s Kelly Da Silva who have all helped to change the way we think about living without children. They will discuss how to find peace and happiness after unsuccessful treatment, and will talk about the societal attitudes to childlessness that need changing.
  • Professor Adam Balen is a leading specialist in PCOS and will discuss the causes of this common cause of fertility problems. He will discuss how PCOS should be investigated and treated and will also look at ways that you can help yourself.
  • If you want to know more about IVF, fertility specialist Jane Stewart will explain what assisted conception is and why it doesn’t always work. She will talk about the limitations of IVF and why it may not always be the right treatment.
  • One of the UK’s leading embryologists, Rachel Cutting will explain how embryos develop from fertilisation to blastocyst. She will look at how embryos are graded and selected, and will explore how time-lapse can help. She will also talk about embryo freezing.
  • Men often get overlooked when it comes to fertility support. Richard Clothier has been a leading voice for men’s experiences of fertility problems. He will focus on men and fertility, and the importance of talking as well as exploring tips for mitigating the grief.
  • Is your lifestyle having an impact on your fertility? Grace Dugdale is a reproductive biologist and nutrition scientist and will give evidence-based information about health, diet and lifestyle in relation to male and female fertility. She will talk about what can impact your fertility, and about preparing your body for pregnancy.
  • IVF treatment is usually more like a marathon than a sprint. Emotional and financial resilience are crucial to continuing the journey, and there can be pressure to pay for additional tests, drugs or interventions which may not increase the chances of success. Fertility specialist Professor Yacoub Khalaf will discuss what’s worth paying for and what isn’t.
  • Are you eligible for NHS funded fertility treatment? There are guidelines from the National Institute of Health and Care Excellence (NICE) on who should qualify, but these are often ignored. Sarah Norcross from Fertility Fairness and Aileen Feeney from Fertility Network UK will explain the current funding situation and what you should be entitled to.
  • Psychology Professor Jacky Boivin explains stress, and what evidence there is about the impact it may have on fertility. She will also discuss strategies for coping with stress.
  • What is ovarian reserve testing and what does it mean? Fertility specialist Melanie Davies will look at ovarian testing and what it can and can’t tell you. She will explain the realities of having fertility treatment when you are older and what this means for the chances of success.
  • One of the UK’s leading fertility lawyers, Natalie Gamble,will discuss the legal situation regarding parenthood for sperm and egg donation. She will explain surrogacy law and practice, recent developments and law reform.

You can choose which of these amazing sessions to attend – tickets for the day are now available at £25 which covers the costs of putting on the day. You can find out more and book your tickets here – https://bit.ly/FertilityForum

 

 

Fertility in the workplace

Patient support charity Fertility Network UK have launched a new initiative this week called Fertility in the Workplace to try to raise awareness of how difficult it can be for people going through treatment to deal with work.

FNUK chief executive Aileen Feeney said: ‘Fertility treatment is on the increase with approaching 68,000 treatment cycles carried out every year in the UK and 1 in 6 couples (3.5 million people) affected, yet the majority of employers do not have a workplace policy providing the vital support employees going through fertility treatment need. Research shows having a supportive fertility in the workplace policy is good for business and employees – levels of distress associated with fertility treatment are reduced and employees are more likely to be productive and remain in work – that’s why Fertility Network is launching Fertility in the Workplace – an initiative designed to help employers support employees facing fertility challenges.‘Careers need not be damaged or jobs lost if there is an appropriate fertility in the workplace policy identifying the specific support available for couples or individuals having IVF. Introducing Fertility Network’s Fertility in the Workplace initiative ensures employees are treated fairly and empathetically and feel fully supported. The initiative provides a framework for employers to implement a fertility in the workplace policy and, crucially, provides guidance for both employees and for employers, who may have limited understanding of the impact of infertility and what fertility treatment is really like.’

Fertility Network’s research highlights just 26 per cent of people having IVF reported their workplace had some policy relating to treatment (58 per cent said their employer did not, and 19 per cent were not sure). The lack of a fertility workplace policy was associated with even higher levels of distress.

‘Companies are failing already distressed employees if they do not provide a supportive fertility in the workplace policy,’ said Ms Feeney. ‘Fertility Network’s survey underlines just how much the lack of workplace support affects people undergoing IVF. 50 per cent of respondents worried treatment would affect their career prospects; 35 per cent felt their career was damaged.’

Petition for access to IVF goes to Number 10

The fertility patient charity Fertility Network presented its #Scream4IVF petition calling for fair access to NHS fertility treatment and an end to the IVF postcode lottery to 10 Downing Street on Monday afternoon. More than 100,000 people signed the online petition. It was a remarkable feat by a small charity to get such support for this cause and to be able to present the petition in this way.

Fertility Network’s chief executive Aileen Feeney said: ‘Gathering 100,000 signatures, in such a short space of time, demonstrates the overwhelming public support to end the unethical and unfair IVF postcode lottery and create an equitable system for access to NHS fertility services in the UK.These 100,000 signatures represent the screams of pain and frustration from not being able to have a child without medical help – and not having your screams heard. The screams of childbirth are loud, but the screams of infertility are just as loud and today they are finally being heard. In the face of this overwhelming public pressure, Fertility Network urgently calls on the Government to debate in Westminster the issue of fair access to NHS fertility treatment.’

Steve McCabe, the MP for Birmingham Selly Oak has been a key political supporter of the campaign for fair access to treatment and he was present when the petition was handed in. Steve’s  Access to Fertility Services bill will have its second reading at Westminster later this month. He said: ’I am thrilled so many people have got behind our campaign to end the postcode lottery of access to IVF. Infertility is a medical condition and it is completely unfair that access to IVF treatment depends on where you live. We can’t have a situation where local NHS groups are allowed to ignore NICE guidelines and ration treatment to save money. It is simply unfair and we wouldn’t stand for it if we were talking about other medical conditions such as cancer or diabetes. It is clear that the public are behind our campaign so now we need the government to step up to the plate and take action to end this disgraceful postcode lottery.’

100,000 call for fair access to IVF

Patient Charity Fertility Network has reached 100,000 signatures on the #Scream4IVF petition calling for fair access to NHS fertility treatment and an end to the IVF postcode lottery. Petitions which reach 100,000 signatures prove the public demand for a debate in Parliament. The #Scream4IVF campaign, with partners Saatchi & Saatchi Wellness, was launched less than three months ago on 6 September 2018.

Commenting on #Scream4IVF’s success, Fertility Network’s chief executive Aileen Feeney said: ‘Gathering 100,000 signatures, in such a short space of time, demonstrates the overwhelming public support to end the unethical and unfair IVF postcode lottery and create an equitable system for access to NHS fertility services in the UK. These 100,000 signatures represent the screams of pain and frustration from not being able to have a child without medical help – and not having your screams heard. The screams of childbirth are loud, but the screams of infertility are just as loud and today they are finally being heard. In the face of this overwhelming public pressure, Fertility Network calls urgently on the Government to debate in Westminster the issue of fair access to NHS fertility treatment. Thank you, too, to the incredible women and men who have shared their #Scream4IVF and made their infertility voices heard. We are stronger together.’

Steve McCabe MP (Birmingham Selly Oak) said: ‘I am thrilled so many people are joining our campaign to end the postcode lottery of access to IVF. Infertility is a medical condition and it is time we started treating it like one. It is simply unfair that access to IVF is down to where you live and not your medical need. In the New Year my Access to Fertility Services Ten Minute Rule bill is due to have its Second Reading in Parliament. This is the first small step to ending this disgraceful postcode lottery.’

Leader of the Liberal Democrats Vince Cable said: ‘People struggling with infertility can all too often face damaging mental health issues. It is wrong that there is so little support. 100,000 backing this campaign shows the strength of feeling behind the call for change. Liberal Democrats are listening and Ministers in Whitehall must listen too.’

Congratulations to all at Fertility Network UK on this huge success, particularly Chief Executive Aileen Feeney and London Regional Organiser Anya Sizer!

New restrictions on IVF funding

It’s National Fertility Awareness Week and today the campaign group Fertility Fairness has released an audit which has found new restrictions on IVF funding. The survey covered all the Clinical Commissioning Groups (CCGs) in England and found that 80% are failing to follow the NICE guidance which says that all eligible couples under the age of 39 should be offered 3 full cycles of IVF treatment.

Many are also setting new criteria to limit eligibility for treatment. Despite the fact that neither male age nor weight affect the success rate of IVF, more than a quarter of CCGs have decided to use the male partner’s body mass index (BMI) to decide whether a couple can access NHS treatment, and 8% no longer offer NHS funding if the male partner is 55 or over. Around one in four CCGs also use AMH or antral-follicle count to check a women’s ovarian reserve (an estimate of the number of eggs in the ovaries) to decide whether she is eligible for IVF. The NICE guidance gives some guidance on levels at which these may be helpful to assess how a woman may respond to the drugs used in IVF to stimulate the ovaries, but there is no suggestion at all that this might be used to decide who should be eligible for treatment.

Consultant gynaecologist and Fertility Fairness committee member Raj Mathur, said: ‘ Male age and BMI are not in the NICE guidance as criteria for IVF and there is no strong evidence of impact on clinical outcomes of IVF. AMH and antral follicle count are in the NICE guideline as predictors of ovarian response, but NOT as predictors of the chance of having a baby through IVF. Commissioners are making unjustified extrapolation in using them for rationing.’

The audit found that

  • 3.6% of CCGs have removed NHS IVF entirely
  • 40% do not offer a full IVF cycle, limiting the number of frozen embryo transfers
  • 20% offer one full IVF cycle, transferring all fresh and frozen embryos
  • 23% offer two IVF cycles.
  • 13% offer three IVF cycles.

In the last two years, 30 CCGs have reduced NHS fertility services, and one in ten CCGs is currently consulting on cutting or removing NHS fertility treatment.

Sarah Norcross, co-chair of Fertility Fairness, said: ‘It is shocking to see CCGs introducing their own ‘access to IVF’ criteria, as well as reducing the number of IVF cycles they offer. It is not the CCG’s job to decide the criteria for accessing NHS fertility services. NICE has accessed the evidence in its guideline and developed access criteria for NHS patients and they do not include male BMI, male age, a woman’s AMH level or whether or not a couple has a child from a previous relationship. What criteria will CCGs introduce next; star signs and shoe size? CCGs need to remove their extra ‘access to IVF’ criteria now.’

Aileen Feeney, co-chair of Fertility Fairness and chief executive of leading national charity Fertility Network UK said: ‘ Fertility Network is extremely concerned about the effect that reducing access to NHS IVF has on already distressed patients. Infertility is a devastating disease causing depression, suicidal feelings, relationship breakdown and social isolation; removing the recommended clinical help or making it harder to access is cruel and economically short-sighted. Access to NHS treatment should be according to medical need and not your postcode. We urge anyone affected to join Fertility Network’s #Scream4IVF campaign calling for fair access to NHS IVF in the UK; with your help we can reach 100,000 signatures and hold a debate on the issue at Westminster. Sign the petition at www.scream4IVF.org and share your #Scream4IVF during Fertility Week.’

Finding Joy Beyond Childlessness

Last week, I had the honour of interviewing Lesley Pyne about her new book, Finding Joy Beyond Childlessness, at her book launch. Lesley went through six rounds of IVF, and spent many years feeling defeated by the experience of living without children – but eventually realised that stuffing her grief into a box and trying to keep a stiff upper lip wasn’t working. Finding Joy Beyond Childlessness is Lesley’s guide for anyone experiencing involuntary childlessness as she takes you through the process that allowed her to discover the happiness on the other side. There’s no short cut to this, and you have to let yourself experience the grief and sadness to come out the other side, but Lesley is a living testament to the fact that this works – and that there is joy to be found,

It was great to see so many people there for the book launch, including the team from Fertility Network UK (Lesley is pictured here with Fertility Network UK Chief Executive Aileen Feeney) and fellow author Jessica Hepburn.The guests included many of Lesley’s friends from More to Life, the part of Fertility Network UK which works with those who are living without children. It was a testament to those lasting friendships that Lesley – and many others – found through the organisation to see so many of the group Lesley first met when she first joined Moe to Life still there and offering their support.

Lesley’s motif is a butterfly and the tables of books were also covered in piles of beautiful butterfly biscuits, carefully colour-coded to match Lesley’s book cover and website.

Lesley works as a coach, supporting others through childlessness, and you can find her guide to a more fulfilling life in the book Finding Joy Beyond Childlessness which is available in paperback and for Kindle, and you can buy it via Amazon.

Meeting tonight – meet Fertility Network UK Chief Exec

If you’re in South East London, tonight at 7pm at the Fertility Network UK office which is at 20 Egerton Drive Greenwich SE10 8JS, you can come along and meet Aileen Feeney, the Chief Exec of Fertility Network UK, who is going to talk briefly about what the charity does and the support it can offer. The office is near to Greenwich station and DLR. Hope to see you there! x