What should you do in the Two Week Wait?

For most people, it’s probably the worst part of an IVF cycle – the notorious 2ww when you get to spend a fortnight (which seems to last about ten years) on tenterhooks, worried about everything you do and don’t do in case it affects the chances of a positive outcome. One of the most frequently asked questions is what you should and shouldn’t do during this time.

You will find all kinds of advice from all kinds of experts about activities, diet and supplements during the two week wait. There are those who advise that you should take the time off work and do as little as possible, spending the first day or two lying on the sofa. Others may advise going back to work right away to try to keep your mind occupied and suggest that it’s best for your mind and body to keep active and busy. I’ve heard of people drinking pints of milk and others avoiding dairy products.  There are women who don’t take baths because they might overheat, and others who are lying around with hot water bottles on their stomachs.

If you visit any fertility forum, you will find it awash with questions and suggestions about the two week wait. Some are quite bizarre – a quick trawl produced all the usual stuff about eating pineapple core and brazil nuts, but the idea that you shouldn’t eat anything uncooked and that you need to wear socks 24 hours a day were both new ones to me!

I will always remember the nurse who cared for us during our first IVF cycle telling me that any rules about what not to do during the two week wait weren’t really set because they would cause an embryo not to implant or induce a miscarriage but rather because they were things that fertility patients often worried about. So, having a glass of wine during the two week wait is not going to stop you getting pregnant, but if your treatment doesn’t work and you’ve had a glass of wine, you are likely to question whether it was to blame.

I think the bottom line with all of this is that if you are sufficiently worried to be asking whether it is OK to do something, it’s probably a good idea not to do it. Two weeks seems a lifetime during the 2ww, but in reality it isn’t a long period to have to give anything up. There are no hard and fast rules, but following your own instincts and doing what feels right for you rather than allowing yourself to be driven to distraction by conflicting suggestions is probably the best advice anyone can give you about what to do and not to do.

It’s March, so make time for tea!

It’s the first day of March today, which means it’s time to Make Time for Tea for the Eve Appeal. The Eve Appeal is the only UK national charity raising awareness and funding research in the five gynaecological cancers. It was set up to save women’s lives by promoting research looking at effective methods of risk prediction, earlier detection and developing screening for these women-only cancers.

The Make Time for Tea initiative is part of Ovarian Cancer Awareness Month, and is aimed at encouraging women (and men) to open up about ovarian cancer and understand the vital signs and symptoms as early detection is key. A tea party is the perfect opportunity to do just this and also raise funds for and awareness of ovarian cancer.

You could host your own event as a tea party to raise funds by asking for donations, or run a bake sale. The Eve Appeal have free fundraising packs, and the first 500 people to sign up will receive a free fabulous Vintage Apron Pattern from Vogue Patterns!

Ovarian cancer is the sixth most common cancer amongst women in the UK and very little has changed for ovarian cancer survival, where so much progress has been made for other health conditions. Over 7,300 women are diagnosed with ovarian cancer each year and sadly 11 women die every day – the team at the Eve Appeal are determined to change these statistics, but they need your help…

Can you help save fertility services in Richmond

NHS Commissioners in yet another area are considering cutting fertility services. This time, it’s Richmond Clinical Commissioning Group which is consulting on whether to continue to offer one fresh and one frozen cycle of treatment or to cut the service entirely. You can give your views by completing their survey –
https://www.surveymonkey.co.uk/r/IVFandICSIconsultation

The consultation closes on Tuesday 4 April 2017, so please do let your views be heard especially if you live in or near Richmond.

The Fertility Show goes to Manchester

Did you know that the Fertility Show will be in Manchester next month? The event which has taken place at London’s Olympia for many years is spreading its wings and will be held at Manchester’s Central Convention Complex in Windmill St on March 25 and 26.

There will be a wide range of speakers including Allan Pacey,  Geeta Nargund, British Fertility Society Chair Adam BalenCharles KingslandSimon Fishel, John Parsons, Rachel Cutting, Jane Stewart, Raj Mathur, Tony Rutherford and Zita West. The HFEA’s Juliet Tizzard will also be speaking as well as specialist lawyer Natalie Gamble and Fertility Fest Director Jessica Hepburn. The sessions will cover a wide range of topics suitable to those just starting out and wanting to know more about their fertility through to more detailed sessions on specific fertility problems and treatment options. There will also be a separate platform for Q and A sessions and a wide range of exhibitors.

Tickets are now on sale here so do come along if you are nearby – I will be there too speaking about how to choose a fertility clinic and will be on the Fertility Network UK stand so come and say hello!

What do the abbreviations mean?

If you’ve been looking at fertility websites or forums (I think it should be “fora” but that sounds too weird), you may have been confused by the abbreviations…

They crop up throughout posts, and at first it can seem as if people are speaking an entirely different language when they talk about TTC (trying to conceive) and being on their 2ww (two week wait) hoping for a BFP (big fat positive – a positive pregnancy test).

Here is a brief guide to some common abbreviations for anyone who may a little help with translation…
A/F = Aunt Flo (period)
AH = Assisted hatching
AI = Artificial insemination
AIH = Artificial insemination by husband
AMH = Anti mullerian hormone
ART = Assisted reproductive technique
BBT = Basal body temperature
BFN = Big fat negative
BFP = Big fat positive
BICA = British Infertility Counselling Association
CD = Cycle day
DE = Donor eggs
DHEA = Dehydroepiandrosterone (a hormone which some believe can be beneficial for women with a low ovarian reserve)
DI = Donor insemination
DH = Darling husband
DPO = Days post ovulation
DPR = Days post retrieval
DP = Darling partner
DPT = Days post transfer
DS = Donor sperm
EC = Egg collection
ENDO = Endometriosis
ET = Embryo transfer
FER = Frozen embryo replacement
FET = Frozen embryo transfer
FP = Follicular phase
FSH = Follicle stimulating hormone
HCG = Human chorionic gonadotropin
HFEA = Human Fertilisation & Embryology Authority
HPT = Home pregnancy test
HRT = Hormone replacement therapy
HSC = Hysteroscopy
HSG = Hysterosalpingogram
ICSI = Intra-cytoplasmic sperm injection
IMHO = In my humble opinion
IMO = In my opinion
IUI = Intra-uterine insemination
IVF = In vitro fertilisation
IYKWIM = If you know what I mean
LAP = Laparoscopy
LH = Luteinising hormone
LMP = Last menstrual period
LP = Luteal phase
LPD = Luteal phase defect
M/C = Miscarriage
OI = Ovulation induction
OHSS = Ovarian hyperstimulation syndrome
OPK = Ovulation predictor kit
PCOS = Polycystic ovary syndrome
PESA Percutaneous epididymal sperm aspiration
PG = Pregnant
PI = Primary infertility
PID = Pelvic inflammatory disease
PMS = Pre-menstrual syndrome
POF = Premature ovarian failure
SI = Secondary infertility
TESA = Testicular sperm aspiration

And finally HTH (hope that helps)!

Have you had fertility treatment in the UK?

Could you help a researcher by filling in a survey? I know I am always posting links to surveys and research – but I do think it’s a good idea to do these whenever we can because every piece of research helps further understanding of what it’s really like to be a fertility patient and how it feels to go through treatment.

This particular survey is being carried out by an MBA researcher who previously worked in a fertility clinic and is totally anonymous but will be used for part of her MBA. Do feel free to share the link with anyone who has had or is having fertility treatment in the UK – you can access it here https://www.surveymonkey.co.uk/r/JSXXS25

Support for endometriosis

I was delighted to be asked to join an Endometriosis UK support group last night to talk about fertility treatment and support. If you have endometriosis, I’d really recommended checking out Endometriosis UK and the excellent support they can offer.

The online group ran really smoothly and efficiently, and they also have support groups running across the country and an online community too. They have lots of incredibly useful information on their website, and do a lot of work to raise awareness of endometriosis, which often goes undiagnosed.

It was great to be able to talk to some of the members last night – inevitably our discussions came round to the postcode lottery of access to fertility treatment and we talked about the realities of going through IVF and getting support amongst many other things. Thank you to all at Endometriosis UK for asking me to join you!

Running for the right to try

If you read this blog at all regularly, it won’t have escaped you that I am a huge fan of the brilliant Jessica Hepburn, Director of Fertility Fest and author of The Pursuit of Motherhood. You may have followed her Channel Swim to raise funds for Fertility Network UK, and now she’s doing it again with the London Marathon.

Jessica has written a fantastic blog post about this and if you want to read more about what she’s doing and why, you can find it here. There’s also a link to her JustGiving page where you can make a donation to support her through her 26 miles. For me, 10k feels like a marathon, and I think it’s a wonderful thing that she is doing – so support her if you possibly can and help to make it even more worthwhile.

Secondary infertility

The fact that fertility problems can occur for people who had no trouble conceiving their first child often comes as something of a surprise – and yet it’s very common. You may have seen the article in The Guardian this weekend by journalist Sarfraz Manzoor about the difficulties he and his wife experienced when they tried for a second child – a subject author Maggie O’Farrell had also written about in the paper some years ago. The magazine Fertility Road covered the subject recently, and it is great that it is being talked about.

All too often, there’s an assumption that secondary infertility is somehow less of a problem because you aren’t childless – and yet in fact the pain it causes may be different, but it is still a deeply distressing problem. Parents can feel guilty about not being able to provide a sibling for their child, and it can be very difficult to escape pregnant women and babies when you have a young child.

People sometimes put off seeking medical advice if they are experiencing secondary infertility having conceived without a problem in the past. In fact, there are no guarantees when it comes to fertility and it is actually more common to have a problem second time around than it is not to be able to have a child in the first place. Sometimes the difficulties you are experiencing are just down to the fact that you are older than you were when you got pregnant before, but there can be other medical problems which may have occurred in the interim. If it is taking you longer than you would have liked to get pregnant again, you should visit your GP in just the same way that you would do for primary infertility – so usually after a year of trying unsuccessfully or after 6 months if you are over 35.

Male fertility evening

It is often noted that there’s a lack of support for men going through fertility problems and it is certainly true that much of the help on offer is aimed primarily at women. Now, for the first time, one London clinic is offering tailored support for men.

Andrology Solutions is running a male fertility evening on February 16th with a guest speaker, Gareth Down, and a team of andrologists at hand to answer any male fertility questions. You can find out more here.