Congratulations to the brilliant team at the Fertility Education Initiative for getting the subject of fertility education on the agenda. It was fabulous to see the subject covered on the front page of The Times, and also covered in the Sun and the Mail. The Fertility Education Initiative’s Jessica Hepburn and Professor Joyce Harper even featured on the Victoria Derbyshire show talking about this.
It’s such an easy subject to misunderstand or misinterpret – and people are often worried that talking to young people about infertility will mean they assume they don’t need to worry about contraception. In fact, this couldn’t be further from the truth as fertility education is about ensuring young people really understand and are fully informed about their own fertility. All too often, women who find they’ve left themselves a fairly small window of opportunity to conceive feel that they weren’t fully informed about their own reproductive clock or about the limits of fertility treatment.
You can read more about the Fertility Education Initiative here where you can also find answers to some common questions, and see a video of the Fertility Education Initiative’s Health Summit Choice Not Chance held in 2016.
Since 2009, the Lister Fertility Clinic has been offering a small number of free IVF cycles each year to try to help people who are unable to access NHS-funded fertility treatment. The cycles are offered in conjunction with the charity Fertility Network UK and there are some criteria for entering into the draw for the free cycles.
You have to be a UK resident under the age of 42, with a cause for your fertility problems. Your BMI must be in the normal range and you can’t have any children from your current relationship. You can’t have been sterilised in the past and you can’t have had a free cycle at the Lister before. There are also some restrictions on the type of treatment you can have, which can’t include egg donation.
You need to send your entry to Fertility Network UK – and you can find the details here
Pineapples are much-discussed by those trying to conceive as their cores contain the enzyme bromelain, which is a natural anti-inflammatory which some believe could help implantation.
Now, the online fertility magazine ivfbabble is using pineapples as part of a campaign of solidarity for those experiencing fertility problems. Their “stronger together” campaign is a brilliant idea which aims to bring people together and to make us all realise quite how common fertility problems and that we are not alone.
The latest figures released by Fertility Fairness earlier this week about funding for IVF treatment have been described as “shocking” by the President of the Royal College of Obstetricians and Gynaecologists, Professor Lesley Regan.
Commenting on the fact that so few clinical commissioning groups (CCGs) are currently following national guidance and that the number which have completely removed NHS IVF has almost doubled in the last year, Professor Regan said “These figures are shocking and it’s very disappointing to see even fewer CCGs following NICE guidance and providing full access to NHS fertility treatment. Current access to treatment is a postcode lottery and these health inequalities people face are unacceptable. Infertility can have a devastating effect on people’s lives, causing distress, depression, and the breakdown of relationships. IVF treatment is cost-effective and should be available on the NHS. The RCOG is committed to working with UK commissioners and healthcare providers to support them in following NICE Fertility Guidelines.”
There are also a couple of very helpful videos on what it’s like to have IVF and ICSI. You can find out much more by having a look at the HFEA’s posts and you can follow for regular updates from the Authority.
The campaign group Fertility Fairness has produced a league table of different areas of the country to show how they rank when it comes to fertility treatment. Fertility Fairness has found that 90% of local clinical commissioning groups, who make the decisions about fertility treatment provision, found that nearly 90% were failing to provide the treatment that NICE has deemed to be both clinically effective and cost effective.
The BBC have provided a link to the full table in an article on the subject which shows that the best places to live if you need fertility treatment are Bury, Heywood, Middleton and Rochdale, Oldham and Tameside and Glossop. In some areas couples who are experiencing fertility problems cannot access any treatment. These are Basildon and Brentwood, Cambridgeshire and Peterborough, Croydon, Herts Valleys, Mid Essex, North East Essex and South Norfolk.
Fertility Fairness Co-Chair Sarah Norcross has been doing media interviews this morning calling for the government to take urgent action about the current funding situation. The government has suggested that commissioners should follow NICE guidance but in practice many are still choosing to completely ignore the evidence about best practice and about cost-effectiveness leaving many patients unable to access treatment at all,
For anyone who is facing a future without children, there is a free webinar which may be of interest later this week. In support of National Fertility Awareness Week, Kelly Da Silva, who set up an online community called the Dovecot to support people who are living without children, will be running the webinar on Thursday 2nd November from 7pm – 8pm.
The topic will be ‘Dealing with Involuntary Childlessness’, and Kelly will be taking questions after an initial input in this topic where she will be discussing the key challenges of childlessness including, shame, disappointment & the impact of childlessness on our daily lives. You can find out more and details of how to join the free webinar on the Dovecot Instagram page here.
We’ve all been there, the “helpful” comments and suggestions from friends and family – the detailed story about the friend of a friend of a friend who had five children after she forgot all about her fertility problems and decided to “just adopt” instead, or the information from a newspaper article they’ve half read about a new treatment, which when you dash off to read it yourself you find has actually only been tried out on mice in Brazil. You know the kind of thing…
They are trying to be kind and supportive, but knowing how best to help a friend or family member who is having fertility problems is hard unless you’ve been there yourself. It isn’t always easy to know what to say or how to say it. Sometimes people avoid the subject altogether because they are worried about getting it wrong, but others turn into fonts of wisdom offering advice and tips on every aspect of fertility which can be difficult to swallow when you know they don’t really have a clue what they’re talking about. Pamela Tsigdinos, the author who has published widely on childlessness and infertility, has written this excellent blog post about infertility etiquette which you may want to pass on to your friends and family – she says exactly what you want to say, but may not always feel able to.
Fertility Network UK is inviting anyone facing fertility issues to an event at Westminster on 1 Nov from 4 – 6 pm to discuss fair funding for IVF.
Speakers include Peter Thompson from the HFEA, Paula Sherriff MP, Rebecca Manson Jones (Candidate for Women’s Equality Party), Geeta Nargund (Director of Create Fertility clinics) and patient campaigner Richard Clothier.
There are limited spaces for the event, and if you would like to attend you can find further details here
Did you know that the charity Fertility Network UK now has a special online group meeting every month for those who are pregnant after fertility problems? The group is open to everyone and will have expert speakers from time to time who will can offer tips and advice and answer questions.
Many people feel anxious when they finally discover they are pregnant after some time trying to conceive, and it can be hard to relax and enjoy your pregnancy. Talking to others who really understand how you feel can be hugely beneficial and the group is online so you can join from wherever you are based. Although it is run via Skype, it is just like a conference call rather than a video conference so you don’t need to worry about being seen. You can find the details and information about who to contact to join here