Could you help to direct the future of fertility research

If you have personal experience of fertility problems, could you help with a project which aims to discover what you really want and need from fertility research?  A group supported by the Cochrane Gynaecology and Fertility Group and the University of Oxford is bringing together people with fertility problems, healthcare professionals, and researchers to try to establish the top ten questions that they want future research projects to answer.  You can take part in this by answering some questions in a couple of short surveys that the researchers estimate will take no more than ten minutes to complete.

This is really important work as it will help ensure that future research focuses on what you want and need to know to help you to make informed choices – so do find a spare ten minutes for this if you possibly can!

There are more details and a link to the survey here

Could scientists have found a cure for PCOS?

It’s incredibly common, but little has been known about what causes polycystic ovary syndrome (PCOS). Now scientists in France think they may have found the solution. They believe PCOS may be triggered by exposure to high levels of Anti-Mullerian hormone (AMH) in the womb which may overstimulate brain cells and raise the level of testosterone in the body.

Experimenting on mice, the researchers were able to reverse the effect of the AMH by using a drug which can be used to control hormones and they are now planning to trial this in women. If it works, it could be a solution to restore ovulation in women with POCS.

PCOS is a very common condition, and women who experience it have a number of symptoms often may include irregular periods, excess body hair, weight gain, oily skin and cysts on the ovaries. Many, but not all, experience difficulties trying to conceive and PCOS is often a cause of fertility problems. You can read more about the new research in New Scientist here.

Why exercise is good for you

A new study suggests that “vigorous” exercise may be linked to an improved chance of getting pregnant, but that more gentle exercise doesn’t seem to make the same difference. So, what counts as “vigorous”? Apparently that’s exercise like jogging, running, football or aerobics which leaves you out of breath, and you have to do more than four hours a week!

You can read more about it on the NHS Choices website – and the results are interesting. If you are obese, the vigorous exercise thing doesn’t work, but instead more moderate exercise such as walking does. As NHS Choices points out, assessing how likely it is that these results are actually widely applicable and correct can be difficult as the results were slightly odd. It isn’t clear why exercise only counts if you do more than four hours a week, or why walking makes a difference to obese or overweight women but not to any others. It is also not clear what they women ate, or whether their weight changed during the study as these factors could make a difference – as could any existing fertility problems so it may be that one of these other factors was in fact responsible.

It does, however, add to the growing body of evidence that keeping active is a good thing!

For anyone pregnant after fertility treatment

I’ve heard from so many people recently who are pregnant after fertility problems who are full of anxiety and feel their pregnancies, which ought to be joyful, are being tainted by the worries from the time spent trying to conceive. Women then blame themselves once again for not being “normal”, but this is a perfectly understandable response to finally finding yourself pregnant after fertility problems. You may find it hard to have faith that things are going to be all right when you have become so accustomed to them not being all right.

It may be helpful to know that there is a closed Facebook group which I look after for the patient charity Fertility Network UK which is just for people who are pregnant after fertility problems which you can find at https://www.facebook.com/groups/Pregnancyafterinfertility/

The other resource which may be helpful is a book I wrote because I felt so strongly about the lack of understanding for people who are pregnant after fertility problems. It’s called Precious Babies – Pregnancy, Birth and Parenting after Infertility and you can buy it from Amazon. It goes from the positive pregnancy test right through birth and early parenthood to interviews with adults conceived by IVF and I hope it helps you realise that you are not alone and that others feel the same way after fertility problems.

 

Thinking of having treatment overseas?

If you are considering going abroad for fertility treatment, you may be interested in this article I wrote for a supplement for The Times earlier this week.

For many people, going overseas can be a cheaper option, and many return with positive stories about their experiences, but you do need to be aware of the facts and understand the differences you may find if you choose to have treatment outside the UK.

There are some great clinics across the globe, but there are also some that are not quite so great and you don’t have the protection that you have here in the UK of knowing that all  clinics offering IVF are licensed and regularly inspected by the Human Fertilisation and Embryology Authority. As you don’t have that luxury with clinics elsewhere, you do need to make sure you do your homework and research as much as you can about the clinic and the country to ensure that you are left feeling that you did the right thing in choosing to travel for treatment.

New fertility group for South East London

I’m going to be running a new fertility group for Fertility Network in Greenwich in South East London which you are welcome to join! We are having our first meeting on the evening of Tuesday March 27. It will be great to see you if you are able to come along!

I first went to a group when I was going through IVF myself and found it hugely helpful to meet other people who understood how we felt. I was a bit uncertain about going along – I didn’t think I was the sort of person who went to group meetings – but in fact it wasn’t gloomy or depressing or any of the other things I’d expected. If anything, it was actually quite uplifting to be in a room full of people who weren’t going to stat asking questions about when we were going to have a baby and why we were leaving it so late…

I’ve run a number of different fertility groups over the years since then and have seen at first hand the benefits they can bring. So why not come along and join us and find out for yourselves…

You can join our brand new Facebook page to find out more or you can get in touch via the contact page here – and hope to see you on the 27th.

Endometriosis Awareness Week

It’s Endometriosis Awareness Week organised by the charity Endometriosis UK. They are aiming to increase understanding of endometriosis particularly among women who may not yet have a diagnosis. It takes a shocking average of seven and a half years in the UK to diagnose a woman with endometriosis.

The charity’s website is full of useful information about endometriosis and explains the symptoms which can include painful, heavy, or irregular periods, pain during or after sex infertility, painful bowel movements and fatigue. Around one and a half million women in the UK are currently living with endometriosis which can affect anyone of childbearing age.

There are lots of ways to get involved if you are interested, and you can organise or take part in Endo the Night which is a fundraising initiative aimed at helping to support the charity. Meanwhile, if If you want some quick information on endometriosis, you may also find this helpful – an article about endometriosis with tips leading fertility specialist Anthony Rutherford.

Fertility Education

Congratulations to the brilliant team at the Fertility Education Initiative for getting the subject of fertility education on the agenda. It was fabulous to see the subject covered on the front page of The Times, and also covered in the Sun and the Mail. The Fertility Education Initiative’s Jessica Hepburn and Professor Joyce Harper even featured on the Victoria Derbyshire show talking about this.

It’s such an easy subject to misunderstand or misinterpret – and people are often worried that talking to young people about infertility will mean they assume they don’t need to worry about contraception. In fact, this couldn’t be further from the truth as fertility education is about ensuring young people really understand and are fully informed about their own fertility. All too often, women who find they’ve left themselves a fairly small window of opportunity to conceive feel that they weren’t fully informed about their own reproductive clock or about the limits of fertility treatment.

You can read more about the Fertility Education Initiative here where you can also find answers to some common questions, and see a video of the Fertility Education Initiative’s Health Summit Choice Not Chance held in 2016.

Free IVF cycles

Since 2009, the Lister Fertility Clinic has been offering a small number of free IVF cycles each year to try to help people who are unable to access NHS-funded fertility treatment. The cycles are offered in conjunction with the charity Fertility Network UK and there are some criteria for entering into the draw for the free cycles.

You have to be a UK resident under the age of 42, with a cause for your fertility problems. Your BMI must be in the normal range and you can’t have any children from your current relationship. You can’t have been sterilised in the past and you can’t have had a free cycle at the Lister before. There are also some restrictions on the type of treatment you can have, which can’t include egg donation.

You need to send your entry to Fertility Network UK – and you can find the details here

 

Pineapples…

Pineapples are much-discussed by those trying to conceive as their cores contain the enzyme bromelain, which is a natural anti-inflammatory which some believe could help implantation.

Now, the online fertility magazine ivfbabble is using pineapples as part of a campaign of solidarity for those experiencing fertility problems.  Their “stronger together” campaign is a brilliant idea which aims to bring people together and to make us all realise quite how common fertility problems and that we are not alone.

You can read more about the pineapple pins here – www.ivfbabble.com  and you can buy the pins directly on Amazon  or from ivfbabble and any profits from the sales will be donated to Fertility Network UK.

 

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