The Human Fertilisation and Embryology Authority (HFEA) have launched the beta (draft) version of their new website to the public and it is aimed at people like you – fertility patients. They want to know what you think of it. Have they got it right?
They have put together a survey so you can give your feedback about the new site. This includes a number of questions about how the information on clinics is presented – including their birth statistics in the Choose a Fertility Clinic section. The HFEA are keen to hear your views about how they have chosen to present these.
The beta service is a work in progress, with new information and features planned for the next weeks and months. You can give your views by completing the beta survey that can be found on the website. Please take a look at https://beta.hfea.gov.uk
There’s a really interesting article here asking whether patients should be allowed to travel overseas for fertility treatment to a country which has different rules and regulations from those at home. We just assume that patients have the right to go wherever they want and do whatever they want, but this article is based on a report in European Journal of Obstetrics and Gynaecology and Reproductive Biology which considers the idea that there are moral issues for doctors in supporting patients who want to travel abroad to avoid the laws in their own countries.
Apparently in 2012 the French Health Ministry sent out a warning to doctors that informing patients about egg donation overseas would carry a risk of five years in prison and a fine of 75,000 Euros because of concerns about human eggs being bought and sold – and in Germany and Turkey they have also had penalties for doctors referring patients overseas for certain treatments.
You can find the report itself, from the European Journal of Obstetrics and Gynaecology and Reproductive Biology here, which argues that governments should be tolerant to patients who wish to travel for treatment and suggests that their doctors who refer them are trying to act in their best interests. However, the article from Fox News quotes a Japanese health researcher from Kanazawa University in Japan called Yuri Hibino who says that in Japan some hospitals are so worried by the risks of egg donation abroad, which can include multiple pregnancies and older mothers, that they won’t deliver babies conceived by egg donation.
What do you think? Should there be restrictions on treatment overseas? Or would that be a step too far and an interference with personal liberties? And what about doctors who refer patients overseas? It’s certainly an interesting issue…
If you’re having treatment at a fertility clinic, you may be interested in a new report from the Human Fertilisation and Embryology Authority which looks at the number of incidents or mistakes that happen in the UK’s fertility clinics. It may sound alarming, but sometimes things don’t go exactly to plan and encouraging clinics to report to the HFEA when this happens can help them to prevent problems occurring in the future and to share experiences so that others can learn from what has happened too.
The new report shows that the number of incidents at fertility clinics is going down, and that they occur in less than one percent of treatment cycles. However, that does mean a total of 465 occasions when something went wrong, and it can be distressing if this happens to you. Only two of these were in the most serious grade A category, and the largest group were in category C, the lowest grade, which might sometimes mean an administrative error, for example a patient being sent a letter meant for someone else.
The HFEA Chair Sally Cheshire urged clinics to use the practical help available from the HFEA to that we can offer to do more to improve patient care: “Whilst every incident that takes place is one too many, I particularly want clinics to concentrate on reducing their grade B and C incidents. Such mistakes are often distressing to patients, largely avoidable and frankly shouldn’t happen. The small reduction in incidents is a step in the right direction but more can and must be done by clinics, and we can help. Since our last report, we have worked with clinics to improve their systems and practices. For example, where clinics are struggling to recognise what changes need to be made to avoid future incidents, our clinical governance team offers bespoke incident training to individual centres. It is for clinics now to step up and make the necessary changes so that everyone affected by assisted reproduction receives the best possible care. I want to see these improvements realised by the time of our next annual report.”
If you missed the debate organised by Progress Educational Trust on the HFEA’s plans to include some patient feedback on clinics on the website, you can catch up with the podcast here.
You can hear the HFEA’s Juliet Tizzard, Infertility Network UK’s Susan Seenan, Yacoub Khalaf director of the fertility clinic at Guy’s and St Thomas and Antonia Foster, a media litigation specialist discuss the issue in a debate chaired by Adam Balen, the chair of the British Fertility Society. It was an interesting and lively evening – and that link is at –http://www.progress.org.uk/tripadvisor
The latest figures relating to fertility treatment in the UK have been released this morning by the Human Fertilisation and Embryology Authority (HFEA) and show a growing number of cycles of IVF with a total of more than 64,000 carried out in 2013. The number of cycles of donor treatment have more than doubled in the last five years, and there has been an increase in the number of same-sex couples having treatment. Success rates have gone up very slightly, but the multiple birth rate from fertility treatment has fallen.
The majority of women having treatment are under 37, and the average age of fertility patients is 35. The report shows that over a third of fertility treatment is carried out in London and the South East – and that in 2012, 2.2% of all babies born in the UK were conceived as a result of IVF.
London’s Lister Fertility Clinic is giving away 25 free cycles of IVF in a draw. There are certain criteria for entry – you have to be under the age of 42 with a BMI between 19 and 30 for women and you must be a UK citizen. You must either have a clear cause for your fertility problem or have been trying to get pregnant for at least two years, and you can’t have any previous children from your relationship.
If you have a spare thirty seconds, could you help Infertility Network UK by answering a question – yes, just one! – about the level of emotional support you felt you got at your fertility clinic? Anyone who has attended a fertility clinic can answer the poll, so do please help if you have a moment – results can help assess how well people feel they are being supported at present. The link is here – https://healthunlocked.com/infertility-uk
TV presenter Kirstie Allsopp has made headlines again with her views on women and fertility – this time claiming that women shouldn’t see IVF as a “lifestyle choice”. Last time she spoke out about age and fertility, I agreed with her – but this time I’m not sure I do.
I honestly don’t think people do see IVF as a “lifestyle choice” – no one wants to go through IVF, no one “chooses” it. I think perhaps sometimes people assume it can help if they’ve left it later to try to have children – and that can be terribly sad if it’s only then that they discover how low IVF success rates drop once you are into your forties.
She also talks about women having to “run the risk” of pumping drugs into their bodies during IVF. Again, although no one would choose to stimulate their ovaries in this way and ovarian hyperstimulation is a potentially dangerous side-effect if not managed properly, I don’t think it’s very helpful to talk about it as running a risk. To read many newspapers today, you would believe that anyone who has had IVF is likely to develop all kinds of ghastly long-term conditions as a result of the drugs, when in fact there is no evidence of this kind of health risk.
I’m glad she’s speaking out about this and I think she’s right to encourage women to have children sooner rather than leaving it later if that’s a possibility – but I’m not sure talking about IVF as being risky, or as a lifestyle choice, is terribly helpful.
It’s every patient’s worst nightmare – the idea of some kind of mix-up in the laboratory with worrying scenarios of confusion whether eggs, embryos or sperm are being given to the right person. As the latest report from the HFEA on what are known as “adverse incidents” shows, such problems are incredibly rare with just three serious problems reported in the UK over a three-year period. There were, however, many more lower grade problems which although they may not have the potential to lead to disasters can still be very upsetting for the patients concerned.
What is perhaps really important about this report is the fact that clinics are telling the HFEA when things go wrong, as it is only by understanding how mistakes occur that they can be prevented in the future. The HFEA’s director of strategy and corporate affairs, Juliet Tizzard, has written an interesting article about this for BioNews.
If you’d like to help support the charity working for all those touched by fertility problems, there’s a new and totally effortless way to raise cash for Infertility Network UK. Be Social is a unique new campaign run by Eeva where you can help raise money with a simple click – either by following one of the clinics in the campaign on Twitter, or by liking them on Facebook.
You can find details of all the clinics on the Be Social page on the Eeva website – you just have to click on the icons next to the names to like or follow them and for each new person to do this, Eeva will donate a pound to Infertility Network UK.
The clinics taking part are Bourn Hall Clinic, Wessex Fertility, GCRM Belfast, GCRM Glasgow, Reproductive Health Group Cheshire, Birmingham Women’s Fertility Centre, The Hewitt Fertility Centre and The London Women’s Clinic Cardiff.
Please help – Infertility Network UK needs funds to be able to help you, and it won’t take more than a couple of minutes to make a real difference.