Raising awareness of endometriosis

Yesterday in London while a million people joined the People’s March, there was another smaller march going on to raise awareness of endometriosis.

The aim of EndoMarch 2019 was to help to publicise tthe need for faster diagnosis, greater education and more funds for research into better treatments and an eventual cure. Marches in other cities and across the world will be taking place next weekend.

There are around 1.5 million women living with endometriosis in the UK, and it can cause painful or heavy periods, exhaustion and bladder and bowel problems. Endometriosis doesn’t always affect fertility, but around half of women with endometriosis experience difficulty conceiving and it is a common cause of fertility problems. It’s a condition where cells which are similar to the womb lining are found in other parts of the body.

Women with endometriosis are not always getting a diagnosis when they visit a doctor with symptoms, and research suggests that it takes on average seven to eight years to be diagnosed. During this time, women are often suffering in silence, uncertain of the cause of their problems.

Endometriosis one of the subjects up for discussion at the Fertility Forum in London on March 30. Ertan Saridogan is a fertility expert with a special interest in endometriosis and he will be explaining how endometriosis affects your fertility. He will cover all the options for treatment and how to choose between them.

The Fertility Forum is a non-commercial evidence-based day which has been organised by patients and all the professional bodies in the field working together, and aims to help those who have been trying to make sense of the overwhelming mass of information on offer. It takes place at the Royal College of Obstetricians and Gynaecologists and is open to anyone who wants to know more about their fertility.

Tickets for the Fertility Forum are on sale here – and you can see more details of the day including a full programme here.

EndoMarch 2019

For the sixth year running, women around the world will be taking part in a peaceful march to raise awareness for those who have endometriosis. The London leg of the EndoMarch will take place on Saturday 23 March with the hope of publicising the need for faster diagnosis, greater education and more funds for research into better treatments and an eventual cure.

The walk is about 2.2km through Central London and is a chance for people who have endometriosis and others who are supporting someone with endometriosis, or who are interested, to make their voices heard. It is free to join but the organisers ask people who want to go along to register so they have an idea of how many people will be joining them on the day. You can register here https://www.eventbrite.co.uk/e/worldwide-endomarch-london-uk-2019-tickets-53917781536?aff=ebdshpsearchautocomplete

You can follow the organisers on Facebook at Worldwide EndoMarch London UK, Twitter at @EndomarchLondon and Instagram at endomarchlondon

Endometriosis Awareness Week

It’s Endometriosis Awareness Week organised by the charity Endometriosis UK. They are aiming to increase understanding of endometriosis particularly among women who may not yet have a diagnosis. It takes a shocking average of seven and a half years in the UK to diagnose a woman with endometriosis.

The charity’s website is full of useful information about endometriosis and explains the symptoms which can include painful, heavy, or irregular periods, pain during or after sex infertility, painful bowel movements and fatigue. Around one and a half million women in the UK are currently living with endometriosis which can affect anyone of childbearing age.

There are lots of ways to get involved if you are interested, and you can organise or take part in Endo the Night which is a fundraising initiative aimed at helping to support the charity. Meanwhile, if If you want some quick information on endometriosis, you may also find this helpful – an article about endometriosis with tips leading fertility specialist Anthony Rutherford.

Endometriosis survey

If you are 25 or under and have endometriosis, would you be able to complete a quick survey for the charity Endometriosis UK? If you know anyone else who falls into this category, do share the link below. The team at Endometriosis UK are looking at the impact endometriosis has on younger women and would be very interested in your views –

https://www.surveymonkey.co.uk/r/6QRK7H9

Endometriosis seminar in London

If you want to know more about endometriosis and live in or near London, you may be interested in a seminar in London later this week organised by Wellbeing of Women. It costs £30 to attend but having been to one of their seminars recently, they are extremely well-organised and interesting. This seminar will include information on the  latest updates on endometriosis research with medical information and practical dietary advice to help manage symptoms. Speakers include Professor Andrew Horne and nutritional therapist Rebecca Pilkington.

There is more information and you can book tickets here 

 

Support for endometriosis

I was delighted to be asked to join an Endometriosis UK support group last night to talk about fertility treatment and support. If you have endometriosis, I’d really recommended checking out Endometriosis UK and the excellent support they can offer.

The online group ran really smoothly and efficiently, and they also have support groups running across the country and an online community too. They have lots of incredibly useful information on their website, and do a lot of work to raise awareness of endometriosis, which often goes undiagnosed.

It was great to be able to talk to some of the members last night – inevitably our discussions came round to the postcode lottery of access to fertility treatment and we talked about the realities of going through IVF and getting support amongst many other things. Thank you to all at Endometriosis UK for asking me to join you!

Marching for endometriosis

Today millions of women around the world will be marching to try to raise awareness of endometriosis, giving all those who are affected by the condition an opportunity to get together and make their voices heard. It’s called the Million Women March, and in London it will be taking place between 12:00pm and 3:00pm in London’s Kensington Gardens.

You do need to be signed up to join in, but it’s never too late to do what you can to raise awareness of a condition which affects about 1.5 million women in the UK alone.  Endometriosis can be painful and exhausting and can make it hard to conceive. You can find much more information about the march and about endometriosis at www.endometriosis-uk.org.  Meanwhile to everyone taking part in the Million Women March, have a great day!