Endometriosis Awareness Week

It’s Endometriosis Awareness Week organised by the charity Endometriosis UK. They are aiming to increase understanding of endometriosis particularly among women who may not yet have a diagnosis. It takes a shocking average of seven and a half years in the UK to diagnose a woman with endometriosis.

The charity’s website is full of useful information about endometriosis and explains the symptoms which can include painful, heavy, or irregular periods, pain during or after sex infertility, painful bowel movements and fatigue. Around one and a half million women in the UK are currently living with endometriosis which can affect anyone of childbearing age.

There are lots of ways to get involved if you are interested, and you can organise or take part in Endo the Night which is a fundraising initiative aimed at helping to support the charity. Meanwhile, if If you want some quick information on endometriosis, you may also find this helpful – an article about endometriosis with tips leading fertility specialist Anthony Rutherford.

Endometriosis survey

If you are 25 or under and have endometriosis, would you be able to complete a quick survey for the charity Endometriosis UK? If you know anyone else who falls into this category, do share the link below. The team at Endometriosis UK are looking at the impact endometriosis has on younger women and would be very interested in your views –

https://www.surveymonkey.co.uk/r/6QRK7H9

Endometriosis seminar in London

If you want to know more about endometriosis and live in or near London, you may be interested in a seminar in London later this week organised by Wellbeing of Women. It costs £30 to attend but having been to one of their seminars recently, they are extremely well-organised and interesting. This seminar will include information on the  latest updates on endometriosis research with medical information and practical dietary advice to help manage symptoms. Speakers include Professor Andrew Horne and nutritional therapist Rebecca Pilkington.

There is more information and you can book tickets here 

 

Support for endometriosis

I was delighted to be asked to join an Endometriosis UK support group last night to talk about fertility treatment and support. If you have endometriosis, I’d really recommended checking out Endometriosis UK and the excellent support they can offer.

The online group ran really smoothly and efficiently, and they also have support groups running across the country and an online community too. They have lots of incredibly useful information on their website, and do a lot of work to raise awareness of endometriosis, which often goes undiagnosed.

It was great to be able to talk to some of the members last night – inevitably our discussions came round to the postcode lottery of access to fertility treatment and we talked about the realities of going through IVF and getting support amongst many other things. Thank you to all at Endometriosis UK for asking me to join you!

Marching for endometriosis

Today millions of women around the world will be marching to try to raise awareness of endometriosis, giving all those who are affected by the condition an opportunity to get together and make their voices heard. It’s called the Million Women March, and in London it will be taking place between 12:00pm and 3:00pm in London’s Kensington Gardens.

You do need to be signed up to join in, but it’s never too late to do what you can to raise awareness of a condition which affects about 1.5 million women in the UK alone.  Endometriosis can be painful and exhausting and can make it hard to conceive. You can find much more information about the march and about endometriosis at www.endometriosis-uk.org.  Meanwhile to everyone taking part in the Million Women March, have a great day!