What do you want from nurses?

The Nursing and Midwifery Council (NMC) is holding a webinar tomorrow (June 28) to discuss how they enable nurses to best support people’s health and wellbeing. The NMC is currently consulting on standards for nurses, and wants to hear from the public about the skills they feel nurses will need in the future.

This webinar is an opportunity to ask questions and share your views on the proposals the NMC is putting forward for the future. Any members of the public are welcome to participate and they are particularly keen to include people who frequently come into contact with nurses (which includes fertility patients!)

You can find out more and register here

Endometriosis seminar in London

If you want to know more about endometriosis and live in or near London, you may be interested in a seminar in London later this week organised by Wellbeing of Women. It costs £30 to attend but having been to one of their seminars recently, they are extremely well-organised and interesting. This seminar will include information on the  latest updates on endometriosis research with medical information and practical dietary advice to help manage symptoms. Speakers include Professor Andrew Horne and nutritional therapist Rebecca Pilkington.

There is more information and you can book tickets here 

 

Final call for male participants – involuntary childlessness research

Some of you may remember that we have been supporting a researcher, Megumi Fieldsend, in her search for participants for her work on involuntary childlessness. Megumi is now putting out a final call for men who might be willing to help her study on  “life without children – lived experience of a man who wanted to be a dad”. She is aiming to carry out her final interviews by the end of July so if you know someone who might be a potential participant, could you ask him if he would be interested in taking part in Megumi’s research project?

There are set criteria for participation, and if you have any questions about the study or want to check about the criteria, please do get in touch with Megumi who will be happy to answer any questions. You can contact her by calling 0778 026 3685 or by emailing her at
megfieldsend@gmail.com

Focus group for research

We’ve just had a request for people who might be interested in taking part in a focus group to talk about their experiences of fertility problems from Dr Shantel Ehrenberg, a Lecturer in Dance and Theatre, who is leading a research study to investigate and increase awareness of women’s often silent emotional and physical experiences of getting a diagnosis of fertility problems.

She is not a clinician, so there will be no medical information and this isn’t a clinical study, but Shantel is interested in understanding women’s experiences of infertility and sharing her findings with medical professionals and the society-at-large. She wants to use your experiences to help to inform a performance lecture as part of this research. A performance lecture is a thirty-minute presentation that includes text, movement, and visual imagery, presented at conferences and workshops, to help raise awareness about women’s experiences of fertility problems.

The current research project is funded by a University of Surrey Pump Priming Award and approved by the University’s Institutional Ethics Committee.  Compensation is offered for taking part (£25).

​The focus group would be about 90 minutes and include a brief introduction of the project.  The meeting will take place in central London. If you want to know more or are interested in taking part you can contact Shantel by email s.ehrenberg@gsa.surrey.ac.uk or phone  01483683137

New online group for people who are pregnant after fertility treatment

At Fertility Network UK, we have set up a new online group for people who are pregnant after fertility treatment.

Whether you’ve just had a positive pregnancy test or are further down the line, you may be interested in joining our new group which will get together online. If you would like to join the group or to find out more about it, please contact kate@fertilitynetworkuk.org

Breaking bad news

Do you think clinic staff get it right when it comes to breaking bad news to fertility patients? And how do you think that could be improved? Are staff too blunt? Or not blunt enough?

I’ve met so many patients who have felt that things weren’t always handled in the best way, and I’d be keen to find out more about where you think things may go wrong – and what you think might work better.

I’d be really interested to know what you think – you can leave a comment below or use the contact form if you would like to send a private response – http://fertilitymatters.org.uk/contact/

Want to know more about long-term fostering?

The patient support charity Fertility Network UK runs regular online groups which you can join via Skype. The next one will take place on Thursday 18th May at 6 pm and the month’s guest speaker is Amel Bouaraba from 24 Seven Fostering. Amel will discuss long-term fostering’. Anyone is welcome to join in – for more information or to find out how to join the call, you can email Hannah – hannah@fertilitynetworkuk.org

The Daisy Network Conference

The Daisy Network, the support group for women with premature ovarian insufficiency, is holding a conference on Saturday 10th June at Chelsea and Westminster Hospital. They have speakers covering a wide range of topics including HRT, fertility, sexual health and nutrition. There will also be an Ask the Experts session and plenty of opportunity to meet other members.

It promises to be an interesting day, and tickets cost £15 for members and £20 for non-members. including lunch and break-time refreshments. You can buy tickets here 

Scottish Fertility Options Day

If you live in Scotland, have you registered to attend the Scottish Fertility Options Day on 6 May in Glasgow? It promises to be a really interesting day – with lots of useful information whatever stage of your fertility journey you are at.

There are talks on health and wellness, including the odds of IVF working for you, the psychological impact of infertility and innovations in embryo research. Speakers include Dr Sarah Martins da Silva, fertility counsellor Alison Elliot, Consultant Clinical Embryologist Dr Rachel Gregoire and a representative of The Natural Fertility Centre.

The day is organised by Fertility Network Scotland and it is free to attend – you can book online and it is well worth going along if you can.

Have you tried a support group?

If you’re immediately thinking “I don’t need a support group” or “I don’t like the sound of support groups”, “Aren’t they full of needy people?”, “Wouldn’t it be a bit embarrassing?” or “I think it would make me feel worse” – think again…

“I don’t need a support group” – Does anyone absolutely need a support group? Not really – but for those who go along, it can be a welcome additional source of companionship and support. You may not need a group, but that doesn’t mean you won’t find it helpful.

“I don’t like the sound of a support group” – I often think that calling fertility networking groups “support” groups is one of the most off-putting things about them. The idea of a support group conjures up visions of having to start by saying “My name is x and I am infertile”. It’s not like that at all. Think of a support group as a way to meet up with others who are going through similar experiences and an opportunity to share and learn from one another.

“Aren’t they full of needy people?” – No, they are full of people like you and me. We all need help sometimes, but the groups are full of people who are actively doing something about this and have decided to help themselves. They’re the stronger ones who are finding ways to get the support we all need during fertility tests and treatment.

“Wouldn’t it be a bit embarrassing?” – People are often anxious about going along to their first support group. Fertility problems are so personal and so intense and it can feel frightening to think that you are going to open up a bit in front of others – but remember you don’t have to. What you say in a group is up to you. Some people talk a lot, others a less depending on how they feel and what they need. A group is a source of warmth and friendship rather than of embarrassment and most people overcome any shyness very quickly.

“I think it will make me feel worse” – You might think that an evening focusing on fertility would be a rather gloomy and miserable event – and that it would be full of tears and sadness. In fact, in every support group I’ve ever run, there has been far more laughter than tears – if you don’t believe me, why not try one and see…

You have everything to gain and nothing to lose by trying a support group. Fertility Network run them right across the UK, and groups are listed on the Fertility Matters events page so you can find your nearest group. Go along and see what you think – you may find you are pleasantly surprised…