Royal pregnancy announcement

Pregnancy announcements are never easy when you’re trying to conceive, but one which has swamped the media and is this morning taking up endless pages of many newspapers is particularly difficult to avoid. What makes this announcement even more challenging is that the Royal couple were only married a matter of months ago, and seem to have conceived with effortless ease.

It was unfortunate that the announcement came during Baby Loss Awareness Week, on a day when many people were preparing to light candles for the Wave of Light in memory of their own losses. Although the couple have been criticised online for this, the most likely reason is that they simply didn’t know the significance of the day.

The endless discussions about the Royal pregnancy are going to go on – and on, and on – during the next few months. One of the best ways of dealing with that is to spend time with other people who understand how you feel about this because they share similar experiences. Why not try one of Fertility Network UK’s fertility groups which run across the UK? They’re an ideal opportunity to meet others and can be really empowering. I admit I am biased about this as I run the group in South East London, but that’s because I know how much it can help. Being with other people who understand, and who share your conflicted feelings about pregnancy announcements can make all the difference. It can help you to realise that you are not having a personality change and becoming an unkind person, but are reacting in a perfectly normal way to an emotional challenge. You can find details of all FNUK’s groups here, and it there isn’t a group near you, they can offer other support too – have a look at their website

Rally for fair fertility funding

It was great to be able to attend the rally at Westminster this evening organised by Fertility Network UK as part of their Scream4IVF campaign to try to push for fair funding for IVF based on the NICE guidelines, which conclude that it is both clinically effective and cost-effective to offer three full cycles of treatment to eligible women who are under the age of 40.

There were a range of excellent speakers at the rally including Fertility Network UK’s Chief Executive, Aileen Feeney, and London Organiser, Anya Sizer. They were joined by Paula Sherriff MP, Steve McCabe MP and author and Director of Fertility Fest Jessica Hepburn as well as Damion Sizer giving a male point of view and the brilliant Hope Sizer talking from the perspective of someone conceived by IVF.

It was an inspiring rally, and ended with some of the recorded screams (which were very loud!) and an opportunity to Scream for IVF ourselves. If you haven’t already signed the campaign petition to get a parliamentary debate on IVF, it’s not too late – you can find it here 

World Mental Health Day, and why it matters to fertility patients

Today is World Mental Health day, and a good time to think about the mental health impact on fertility problems, tests and treatment. All too often, there’s an attitude from those with no experience of infertility that it isn’t a really serious problem, and yet anyone who has been through this themselves will be only too aware of the way it can impact on your health.

A survey for the patient charity Fertility Network UK and Middlesex University found that respondents reported feeling sad, frustrated, fearful and worried, out of control and helpless most of the time. They often felt stressed, tearful, inadequate, angry, isolated, despairing, depressed, guilty or shamed and experienced low confidence and concentration and a loss of sex driven. They also felt unsupported. Even more alarmingly, 42% of respondents said that they had experienced suicidal feelings.

If you are going through treatment and are finding it tough, there is help and support out there. The patient charity Fertility Network UK offers free group meetings around the country where meeting with other people going through similar experiences can be hugely helpful, and have a support line and online forum too. The British Infertility Counselling Association has a host of specialist counsellors ready to help with emotional support, and you can also talk to your GP if you are feeling in need of counselling. Don’t suffer alone.

Pregnancy test recall

A false positive from a pregnancy test is the nightmare of anyone who has been through fertility treatment, but more than 58,000 digital pregnancy tests called Clear & Simple have been recalled after it became apparent that the test had mistakenly told some women they were pregnant when in fact they weren’t.

If you have bought a Clear & Simple test, manufactured by Guangzhou Wondfo Biotech, you should return it if it is from the potentially faulty batch. You can check the lot number on the inside and outside of the package – it is Lot Number DM10220170710E with an expert date of January 2020 which is affected.

The manufacturers stress that only a small number of problems have arisen with the tests and that they have been removed from shops already, but if you do have a test from this batch, you should return it and anyone who has had a false positive result from these tests should report it.

Scream4IVF

I am sure you will all be aware of Fertility Network UK’s Scream4IVF campaign, aimed at ending the postcode lottery for IVF treatment. If you haven’t signed the petition yet which calls for a parliamentary debate on the subject you can do so here. The charity has been asking people to donate their scream on social media to give a voice to people with fertility problems and allow their frustrations to be aired. The screams will be collated to form the world’s longest scream for IVF to be played at a rally outside Westminster. The charity is encouraging people to join them at at the rally which takes place at Richmond Terrace at Westminster on October 10th from 5pm to 7pm.

Music to support fertility charities

If you are in London on September 29, why not take the opportunity to attend a concert to help raise funds for two fantastic charities, the Donor Conception Network and the Daisy Network.

Taking place in St Mary’s Church in Rotherhithe, the  concert is with Dunajska Kapelye, a trio who play beautiful gypsy and Eastern European music and are led by one of London’s most respected violinists, Polish Piotr Jordan. The concert will feature plaintive Gypsy ballads, tub-thumping Romanian wedding dances, elements of tango and klezmer. It promises to be a wonderful evening – and great to be able to be raising money to support such important charities with their work at the same time.

You can find more information on Facebook https://www.facebook.com/events/710467139299822  and you can buy tickets here  http://tunedin.london/tunedin.php

Have you had fertility treatment in the last 5 years?

If you have had fertility treatment in the UK in the last five years, would you be willing to help identify key areas for improvement to ensure everyone receives high-quality care in the future?

The Human Fertilisation and Embryology Authority (HFEA) which regulates fertility clinics in the UK has launched a national fertility patient survey and your views are vital to help the Authority understand experiences of treatment. The survey is being run by YouGov, and the more people that take part, the clearer the views and the greater the impact.

This is an excellent opportunity to help other people going through fertility treatment by giving the information and opinions the HFEA needs to help ensure these are taken into consideration in the future. The survey takes about 15 minutes to complete, and the link is here.

Scream for IVF!

The patient charity Fertility Network UK has launched a new campaign today called Scream 4 IVF which aims to raise awareness of the unfairness of the postcode lottery for fertility treatment. Currently a majority of those who need fertility treatment end up paying for themselves, and local commissioners who decide how to spend NHS funds are often ignoring the guidance from NICE on this and rationing fertility treatment.

The new campaign asks you to upload yourself screaming on social media with the #Scream4IVF and link to the petition bit.ly/Scream4IVF to call for a debate in parliament on fertility funding. Of course, you also need to sign it yourself!

Please, do support this important work – if you don’t want to scream, just sign – whatever you can do will help. You can find the campaign website at https://www.scream4ivf.org

Could you help to direct the future of fertility research

If you have personal experience of fertility problems, could you help with a project which aims to discover what you really want and need from fertility research?  A group supported by the Cochrane Gynaecology and Fertility Group and the University of Oxford is bringing together people with fertility problems, healthcare professionals, and researchers to try to establish the top ten questions that they want future research projects to answer.  You can take part in this by answering some questions in a couple of short surveys that the researchers estimate will take no more than ten minutes to complete.

This is really important work as it will help ensure that future research focuses on what you want and need to know to help you to make informed choices – so do find a spare ten minutes for this if you possibly can!

There are more details and a link to the survey here

Could you be a lay examiner?

The Royal College of Obstetricians & Gynaecologists (RCOG) exams department is recruiting a new pool of Lay Examiners. The Membership Exam (MRCOG), for hospital doctors wishing to specialise in obstetrics and gynaecology, consists of a Part 1 written examination, Part 2 written examination, and Part 3 examination which is a role-play style Clinical Assessment involving multiple tasks. The new pool of examiners will build the capacity the College has to examine Part 3 as there is a growing number of doctors applying for the exam.

Part 3 aims to assess candidates’ ability to apply core clinical and communication skills in the context of the skills, knowledge, attitudes and competencies as defined in the MRCOG curriculum. For this, candidates are examined by Clinical Examiners alongside Lay Examiners. How doctors effectively communicate with and support their patients to understand their health and the choices they have is a crucial part of their role and the care they provide. Lay Examiners are responsible for assessing these skills.

Exams take place several times a year in London. This is a paid opportunity, remunerated at a fee of £125 per day of examining, excluding training days and the briefing session held the day before the examination. Travel is organised and paid for by the College and accommodation is provided for Lay Examiners who cannot travel to and from the College daily, on the days of examinations.

This is the second time the RCOG has recruited Lay Examiners. The College did so two years ago when Lay Examiners were first introduced into the Part 3, and they have since been successfully examining.

You can read the full role description, requirements and application process on web page below.

The closing date for applications is Wednesday 5th September, with a selection and training day scheduled for 25th September.

https://www.rcog.org.uk/en/about-us/get-involved-with-our-work/rcog-roles/part-3-mrcog-lay-examiners/